In considering what is happening when a PwME is experiencing PEM & exhaustion, please factor in that swollen lymph nodes are a significant symptom...
Ok, so this might NOT be THE SEMINAL PAPER to squarely prove that LC is not FND if you are an academic or expert in either condition. Perhaps it...
All together now, Long Covid is NOT FND!
I am so happy to see this comprehensive paper. Great work from all involved. Thank you.
Apologies in advance if my terminology is wrong but could the symptoms of nausea, pain & fatigue be more akin to signalling in metabolic shifts in...
I am not an expert at all but I was recommended isometric excercises for my son. I can’t access the specific ones from the device I am on at the...
Dr Weir said that it is common for PwME at the severe end of the spectrum to have Gastroparesis, however, I don’t recall if it has been stated...
@tuppence Thank you for your valuable contribution to this discussion.
I just listened to the author interviewed on Radio NZ today and immediately came here to check if her findings had been discussed. My thought was...
While I can appreciate the sentiment in the response from parents and carers being one myself with a son with nutritional issues, I think they are...
I just saw an ad on Twitter from BMJ promoting their Best Practice guidelines being available to Te Whatu Ora staff until end of Sep 2024....
Those who have listened to the doctors pitch their theory live on radio, do you now see why I was doubtful they actually wrote the article? I am...
The radio interview has broadcast and it was appalling. Dr Wilson back-pedalled early on to clarify their suggestion is based on success in...
Good News: David Tullers critique of this article...
@Amw66 Similar to my son with ME. The doctor who diagnosed hEDS described him as Marfanoid but not actual Marfan syndrome. I think it had more to...
I have read this article multiple times now and have finally realised why something felt “off” about it, aside from the theme. I have a nagging...
Ah yes, Hamish Wilson, he heads the Mel Abbott The Switch Fan Club at Otago Med School
I don’t understand how these author’s get a paper like this published when they include no clinical experience of treating or curing Long Covid or...
These recent comments in this thread have been interesting. As a mother caregiver who only recently joined this forum I wish I had joined 5 years...
A short interview with David Coventry about his book Performance and MECFS. I’m sold after reading this. Ordering the book now....
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