@Hutan Thank you for your kind words. It is difficult when you cannot make things better nor give your kids certainty about improvement &...
I am seeking advice on how to determine if my son is experiencing an extremely long PEM Crash or if his baseline status has now transitioned from...
It would be so helpful if someone could put in an application based on doing research that documents the harms from GET/CBT & LP in the NZ...
They will all be desperate to recover.
@MelbME it is good to have you here. I am a mother or a teen with severe ME and my grasp on the science is basic so if you do reply please do so...
I despair. It is so pervasive and behind every example is a corrupted human being acting with intent to deceive others. There was an interesting...
@dave30th - You will find Rachel Whitfield easily enough on FB in LC forums & Optimum Health etc - posting links to her being interviewed about...
I have been keeping an eye out for other LP articles to see how Phil Parker responds and saw this one from Scotland. It is not great as it makes...
https://longcovidadvocacy.substack.com/p/tin-foil-hat-territory-the-gupta?r=1s0n2a&utm_campaign=post&utm_medium=web&triedRedirect=true Tin Foil...
Is that the most eloquent way of saying “we don’t give a F*@K about your complaint” ever?
@hibiscuswahine It is a tricky situation here in NZ. Arroll & others will never change their position on this and it seems that the GP College &...
@Hutan that is intriguing about Rachel Whitfield being the LP recovered person. I was not aware of her previously but on listening to her in the...
@Hutan I can understand you being disappointed because we know it could have gone so much further and been more damning. But I think it was fine...
A print "teaser" article has just appeared on the BBC website...
Some posts have been moved from Anyone tried Lightning Process for Long Covid? Here is the link to the promo for it live on Tuesday 21 May...
@Tapanui 'Flu I love this! You have such an endearing style & tone in your writing that draws me as the reader into your story like we are old...
In the same vein that pseudoscience is commonly perceived I’d suggest something like; pseudorehab, pseudotherapy, pseudocare or pseudocure. Other...
I spoke to her a month or so ago to give background to LP in New Zealand and I got the distinct impression she perceived LP as a dangerous &...
Rachel Schraer posted on Twitter that her story on LP & LC will be out next week on BBC and a documentary on Radio 4. I expect she will mention...
Due to time zones I could only watch the first few hours each day but based on what I did see I was impressed with the organisation, the content...
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