Sharing this here as I do not know if Jeff Lubell is a member and his comments are relevant to this thread. “If I have one plea for medical...
https://www.gofundme.com/f/help-ren-get-medical-treatment-for-lyme-disease Stem Cell treatment seems to have been years ago (2016?) and he is...
@DMissa & @Hutan - Re the question on PwME gaining less weight with comparable dietary intake I can add that this is the case for my son & at...
I don’t recall if it has been mentioned in this thread, but I’d like to have the inflammation of lymph nodes included. My son is in one of the...
I shudder to think of the disastrous effect this endless stream of noxious “science” ,and its promotion in health governing bodies & media, will...
I've watched a couple of the NIH NINDS ME/CFS Research Roadmap videos and I am struggling to reconcile that they come out of the same organisation...
Wikipedia pages for Simon Wessely & Michael Sharpe could be updated to include a summary of the George Monbiot Guardian article & link in...
Does anyone have a printed / PDF version of this original Medcase they can share with me? I am wanting to highlight the extent of the editing the...
I chanced upon this paper today and thought it could be of interest in the wider forum but did not know how to pitch or tag it. I will leave it to...
I was actually relieved because there was a risk any “new” expert advisory group could have included the self-proclaimed experts (BA) who are...
This thread reminded me of advice I got from an Ayurvedic doctor I consulted at a health spa at a resort in Malaysia 20 years ago. He recommended...
Thanks for that reply Hutan. It is helpful & makes me feel a little more comfortable sitting on the fence.
There is absolutely no reason that I know of for hypermobility being associated with ME. Thanks for your thoughtful and clear response to my...
Can you please explain the skepticism around HSD or hEDS in connection with MECFS? I am relatively new in the forum but have picked up on this...
Sorry to hear about your MIL. It’s a topic I am personally familiar with. I’m here as a mother of an 18yo son with MECFS, but also have a 20yo...
Thanks for starting this thread Tom and to others for contributions so far. I was having this conversation with my son Frank today. He is 18 has...
I am curious to know if you have had any response to your letter yet.
Hutan, I think your letter is great. I am very new to the forum and have not yet got my head around how to navigate it and I may have made an...
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