I think we should stop to talk about the role of deconditioning. It's certainly a small issue especially in severe cases but not the main problem....
I really like this hypothes. How difficult it is to prove that there is that problem with tissue hypoxia and endothel dysfunction?
I ask if this "air hunger" or "breathlessness" or what it is - if it´s not because of muscle weakness, accumulation of lactic acid in muscles or...
will we see the numbers from all countries or just from the best ones? I am from Slovakia and I would like to see our numbers. At least it was me...
great, we promoted the survey in ME/CFS czech and slovak facebook group. The languages are almost the same - so the slovaks will understand as...
I have one question. I have been diagnosed with CFS. The term ME doesnt exist in my country. Should I answer the question "Do you have me?" - Yes,...
In the last years I read a lot of ME/CFS research studies and theories about what could be wrong in ME/CFS. I understand that research progress...
It´s great to see that the numbers of subscribers for this study are growing so fast. I think nobody expected it. If I remember correctly the...
Thanks Simon for your blog :-) Maybe it´s stupid question and maybe it´s even not possible to answer it but how difficult it can be to find that...
Hi, I would like to support some research activities. I know some of them in US like OMF, SOlve ME/CFS Initiatives. I think they have good...
I didnt follow the conference. Were there any interesting findings from research groups which woul bring us further to understand ME. Is it...
Regarding OI debate i would like to ad my own experiences. When i was standing my heart rate got much higher. I could do bicykle for 10 minutes...
I didnt read all those threads about possible metabolic problems but is it already sure that there are? For me it makes sense but i have no...
Hi Mike, I see that you will run marathon the 7th of april in Bratislava. I live there and I lead slovak facebook group (but we are not really...
What can we expect from the symposium?
Great to see so many researchers but the progress is terribly slow :-(
In the past the patient's community was able to crowdfund for OMF (Davis research), Lipkins research several millions. Maybe it's worth to try it...
Great to hear that money are comming. I think with The Pineapple Fund donation, OMF, NIH and many donors - Stanford research team will not be far...
Is there a time frame when we can start to see the first results? It seems everythig pretty good but it goes terribly slowly. Will they release...
If I remember correctly Mark Davis found some problems with T cells.
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