The comorbidity question is particularly difficult and I'm feeling a bit bad about my pragmatic approach here. Which is that - for now - it's...
A carefully moderated/facilitated peer support forum/group is a beautiful thing (that's why we're all here!) but things can go very wrong if you...
The more I see of placebo effects and attribution bias the less I think those stories and studies have to offer. Recovery stories claiming a...
Dilemma all right. Exacerbated by the fact that many patient organisations have limited resources so need to make some hard choices. Ideally...
A very mixed bag. Documenting the lived experience of severe patients is valuable and many of the issues raised by the 5 patients deserve to be...
Some extracts from the interview have now been posted here:...
Way out of my depth here. If somebody could translate into plain English? What to make of this: significant differences in viral loads between...
:rofl: Hadn't thought of that. Would save the fine, too. I can't get myself to the library these days but if any other bookworms happen to get a...
So, trying to summarise what I've learned here so far. A true low reading is due to low oxygen in the blood. This is obviously important in the...
Can't comment on the new version but back when I could still read books I got an older edition out of the library. Meh... Just looked up the...
They looked at ME patients both before and after exercise but for the controls there only seems to be one time point? Also, the numbers of dots...
Fukuda would be fine if they made sure it was Fukuda with PEM. Which I'm hoping Dr Levine would have done. But unfortunately not made clear in the...
I don't know enough to judge how good this hypothesis is but testing it asap and thoroughly does seem worthwhile if only because we keep getting...
If the purpose of the public thread is as a resource for journalists would it be an idea to have several public threads, each on a different,...
Some sort of atypical autoimmune problems may well be going in ME, or in subgroups of ME, but calling them characteristic of ME seems to be...
Maureen Hanson sums up the whole sorry saga: [MEDIA] "The BMJ article from Paul Garner shows the danger of assuming that the course of long COVID...
This really worries me. Also, a biomarker may not be widely accessible, e.g. if it requires expensive scans or the sort of tests only a few labs...
Yes, there's bound to be significant bias. People with fewer resources, be they financial, social or cognitive ones, simply won't get diagnosed....
Yeah, but they didn't specify what sort of pain. The fatigue and headache combo after cognitive exertion is not unknown outside of ME. Plus they...
Has anyone been able to access the full paper? PEM induced by cognitive exertion is underexplored, or should I say it's even more underexplored...
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