I was just expecting a higher standard of cut & paste I guess, to make the deception less obvious :D That's why in my letter I mentioned ME in...
Yes, the NASA lean test would be a good addition since postural orthostatic tachycardia can sometimes be improved with treatment. As a tactical...
Just received a reply from my local MP to my letter. An excellent example of a politician giving the impression doing something but actually...
My first MRI was more than 20 years ago in one of the early model scanners; my latest was in a brand-new, latest of the latest model machine. So...
You are correct, there is significant symptom overlap. I was initially misdiagnosed with MS (via MRI). I then had a long period of...
I've never applied for any benefit myself but a quick look at Work and Income's website comes up with this potentially significant hurdle (my...
Couldn't agree more. The tricky bit, apart from getting any such studies/registries funded, will be to make sure whoever's doing them knows their...
Only the two letters from our members (see posts #2 & #7) were published. I didn't check if they were printed in full but I think so. There's...
Does anyone know where the frequently quoted estimate of 20,000 people with ME in NZ comes from? Somewhere on the forum (sorry, can't remember...
How would measuring the trend in heart rate variability (HRV) work as an objective outcome? Lowered HRV has been linked to all sorts of...
And a couple of short pieces of mixed quality in the Gisborne Herald this week (but mostly the NZ media don't seem to have noticed May 12):...
Scoop.co.nz has picked up a press release from ANZMES:...
A couple of articles in the community paper The Star (Dunedin) this week. My guess is that both articles were supplied copy, the first by the...
Would an app along the lines of what was discussed by Sadie Whittaker fit the bill? Discussed here:...
Every research paper should have an obligatory @Wonko summary at the top. It would make for much more efficient, informative and entertaining...
Can there really be 77,000? I know nobody really knows how many of there are, what with all the different diagnostic criteria and all that, but...
@ahimsa : How about something like: "Look at ME - tomorrow it could be YOU" That would be the angle that ME can happen to anyone - any age, any...
I don't think this has been posted yet, it's from March 2019: feature article on TV Syd, (Denmark). Top marks to article for describing impact of...
Ah, so that's how we can be both disabled and recovered simultaneously... thank you for clearing up that mystery.
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