Welcome @Gretel. Good to have you here.
Tricky but interesting question we probably can't answer yet. I suspect that PEM could well be the distinguishing feature here. Trouble is it's...
Had my first reply from one of the Green MPs (or rather from his office). My letter has been forwarded to the spokesperson for disability of the...
My PEM must be lifting at last. At least I managed to write a letter to the Listener expressing my dismay at Wilson's piece and suggesting they...
Particularly disappointing is that Wilson in previous columns expressed great concern - genuine I believe - for the mental welfare of young people...
Bizarre... Am I the only one getting the sense the editors were wilfully misunderstanding @Michiel Tack? Anyway, thanks for all your excellent...
'fraid so... I strongly suspect that whether or not you engage in "all or nothing behaviour" is as likely caused by your external circumstances...
Thank you. I do hope they print it. Ideally as a guest columnist in place of Wilson in the next edition ;) Or maybe it at least gives them the...
Bravo @JohnTheJack ! Little by little we're getting somewhere. Thank you. I can't even begin to imagine how you managed to find the strength,...
You're a star :thumbup:
Another interesting observation. It's what's missing in all of those severity scales. They all have something along the lines of "symptoms...
My experience is similar to @Trish's except that phase 3 is divided into two: a first wave of symptoms at 4 hours post-overexertion followed by a...
@mango :(:hug: On a lighter note: The parents of severely ill Marie Louise, Vibeke and Esben, are finalists in Denmark's Patient Award in the...
Anyone able to write a polite but firm and scientifically sound letter to the editor of the NZ Listener (I'm too badly crashed myself)? The May...
The article actually makes some good points outlining some problems in the field. Such as that if patients don't have an 'accepted' diagnosis...
Is anyone here able to explain McGregor's hypothesis in simple terms? I've watched the talk twice, with lots of pauses to read the slides and try...
Bump. And signed.
Update: Received a couple of replies, one from the editor and one from ANZMES, but no new info and no answers to my specific questions (what...
To do: write letters to MPs before May - tick (just: it's late on April 30th :D). 1/ To the Greens, suggesting that ME Awareness week could be a...
On a side note, and not immediately relevant to ME, here's another example of the versatility of exosomes. This comes from a newspaper article...
Separate names with a comma.
