No, the sentence I quoted in post #117 is the sum total of what there was in the newsletter on that topic, and by the sound of it the newsletter...
Just wanted to say a big THANK YOU @Dx Revision Watch. With my current brain function I haven't got a dog's show of understanding what exactly it...
My vote is for @Hutan to write new guidelines for all our District Health Boards. This bit makes things tricky: ANZMES is the largest ME patient...
I must have missed (or forgotten?) that. Can you elaborate? What guidelines and what problems, other than that silly personality stuff, are there?
From the April 2019 newsletter of ME Information and Support (Otago and Southland) That's all I know. Does anyone here have more information...
That actually makes it worse. More expensive. Bigger waste of money. Yes, it's hard. Every time I read another general article about the evils of...
Article and short video in SunLive: When ‘the horrible monster’ called on Kaye...
First thought upon reading a DHB (I assume?) is considering this: they haven't been making their targets on diabetes or reduced hospital...
My current take: the cells are working flat out (hyper) but due to some glitch in the system still cannot produce enough energy (hypo). Same...
Interesting idea that "CFS-only" and "CFS+fibro" could be two different illnesses (the paper uses CFS). They seem to have found a variety of...
Not convinced he really understands PEM - see my high-lighting in the quote below. Sounds more like he's read about it and thought he'd better...
Good idea for a study provided it's well executed. Why only periodically? That sounds like a recipe for missing important data? Definitely need...
Good question. I'm pretty sure the 'under construction notice' has been there for quite a while. Maybe also ask about the timeline: where are...
Thank you for the reminder @MyalgicE. How did you guess I was trying to fit in far too much?:laugh: No local Green MPs in my area but could be...
Have you managed to write something @Hutan? I've decided I'm not comfortable sending the ANZMES template letter as it stands because of its...
Probably because that would have required time travel to see if increased symptoms the next day could lead to more activity the previous day... I...
I did ask them. Twice. Stock answer both times (paraphrased): "Thank you so much for your interest. Keep an eye on our website, we're always...
Great minds think alike :D. Currently working on my submission for the Health and Disability System Review (closes 31/5/19) and put in exactly...
In the Ubiome results phagosome is listed under 'bacterial abilities'. It's the 'bacterial abilities' bit I don't understand. I understood...
I have no personal experience with DSS, so some questions: Are you saying they have more money than the DHBs to provide services and therefore...
Separate names with a comma.
