I have registered and have a link but do not anticipate being able to listen to much of it. Two hospital appointments next week and following up...
There is a page in the hard copy of today's Times- page 21- devoted to Maeve's story, written by Fiona Hamilton. Heading is " Patients with ME...
Thanks for trying @Dakota. I don't know if decisions in the US are as politicised as they have been in the UK. Am sure we all hope that the large...
Jeanette Burmeister has today posted a series of 4 tweets 1) NIH’s Agency Intramural Research Integrity Officer (AIRIO) has begun assessing...
I am not participating at the moment but saw this article today and was troubled by a number of issues. I really can't elucidate them now but...
Reporting back after taking daridorexant. When it was approved by my local Formulary, my GP gave me a prescription and I have been taking 25 mg...
It's 5 years yesterday since Physios for ME was formed. What a lot they have achieved. Congratulations and thank you for all the hard work. I...
Part 3 is taking me longer to read than I expected. I think this may be because it is based on a much deeper knowledge of the background to this...
The next blog post by Jeanette Burmeister...
Thanks for posting the Substack link @SNT Gatchaman. It clarifies that "Anyone trying to suggest that vaccines are the cause, or even part of the...
Type 111 EDS (hypermobility), is the only one of the 14 types not to have a genetic marker, until now. The paper also addresses the issue of...
I think you can encourage the development of genuine empathy, not really " instill it " but promote its understanding and use in appropriate...
I have a foldalite trekker which I am delighted with. It's not a large power chair nor is it small, somewhere in between. It comes in two widths....
Or some omissions in their training. Surely it would be possible to include some empathy training?
No wonder it took Walitt and Nath so long to write the paper. They had to find a way to present the data so it showed what they needed it to show,...
Part 2 of Jeanette Burmeister's article on the NIH intramural study is posted on her blog. It is long and requires concentration to read but she...
Thanks for posting this @Dakota15. Good to see recognition for both long covid and long vax.
Yesterday I had a letter from the Sinai research team asking if I was still interested in providing a sample. They had obviously kept my details...
A Dutch study has found that there has been a rise in excess deaths since the pandemic which may have been caused by the vaccines. "Researchers...
Fantastic! This research team means business. I am so disappointed that I visited New York ( to see my son) last November, contacted Mount Sinai...
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