I found this sad too. I did look up respiratory ALS, which she described as "suspected". https://en.wikipedia.org/wiki/ALS "Motor neuron loss...
I agree.
It's not always easy to differentiate between "dangerous nonsense" and the truth and it's in this space that we lived during the pandemic....
https://www.telegraph.co.uk/world-news/2023/07/04/joe-biden-white-house-accused-covid-vaccine-censorship/?fbclid=IwAR01ZFlqPGElbFHm2Bhh-ZumkqHgM8TJ...
Unfortunately I think it's hugely risky to go for a programme even if an interested editor could be found, solely through the lens of ME. The BPS...
[IMG] ME/CFS News @MECFSNews A protest by #MECFS, #LongCovid and #postvac patients in Germany in front of the building of the federal parliament....
Why, oh why? If only ME patient activists had been listened to, and action taken, then patients including doctors with new post viral conditions...
We have some reports of adverse responses to covid vaccines on the vaccines and vaccine experiences threads but I think it's time for the topic to...
She was so clear that it was the booster shot that caused her to have ME/CFS. " I was diagnost with [an] untreatable chronic neurological illness...
MEResearch UK has tweeted a link to some details of the Invest in ME Conference....
Absolutely. It was actually hep A that affected her and she has continued to be vaccinated. I think she is also making the point that supporting...
A tweet discussion between Julie Rehmeyer and others about recognising the vax injured, and not wanting to deter others from being vaccinated. It...
https://www.linkedin.com/pulse/international-me-conference-week-investinme-research/?utm_source=share&utm_medium=member_ios&utm_campaign=share_via...
The following link is from the Daily Mail online today. I reminded myself that the Daily Mail was more responsive to the issue of ME than many...
There are cases in the UK going through the legal process. Many people are reporting extremely serious and life changing injuries.
Tweets (by Tess Falor) have been posted on a private FB page. Lots of info already up. Several talks already tweeted. From the series of tweets...
Well.......who is to say? IMO, the online title is a lot stronger with words like "shockingly poor" in the headline. The omission of the case...
Headline in my hard copy of the Times is a bit different from online which is https://www.thetimes.co.uk/article/" Thousands of ME patients...
Posts have been moved from 3 threads: UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward UK NICE 2021 ME/CFS Guideline, published...
I think Ron Davis said something similar a few years ago in the context of his research applications being turned down. He said that the NIH was...
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