I've been in touch with Action for ME a couple of times. I was initially told that there would need to be a meeting to agree the minutes which...
I found this on Action for ME's fb page today. I had been checking on it regularly but only found it today although it says it has been up for...
Has anyone heard what happened at Wednesday's APPG? I am assuming it took place as planned.
Thank you to @Hutan and @Trish for your sterling work throughout the night too. I have just looked at Dr Hng's fb page and, as well as some...
The joint pain that I have experienced since the vaccines continues to be severe. The NHS Pain clinic was of no help. Mindfulness was its proposed...
Bump to confirmed date for next APPG- Wednesday THIS WEEK, 10th May.
The carer's/ lover's perspective and pain. Exquisitely written. How someone can be absent while present.
@Hutan So very glad to read this. " It (ME/CFS) is exercise intolerance, exhaustion after activity". This is exactly how I experience ME. I have...
Thank you to those severe patients who underwent this gruelling experience. I hope that they have all recovered back to baseline.
From MEAssociation Newsletter MAJOR RESEARCH GRANT TO LOOK AT LINK BETWEEN LONG COVID AND ME/CFS Griffith University’s research into the...
I need to read about this and find out what it is about. Am a bit confused.
Fingers very, very crossed that something useful emerges and that the paper is published quickly Now I'm going to make a huge leap ...........
Thank you @ukxmrv. I have three separate replies to the three yellow cards I filled in. They are identical apart from the different number...
Yes. It's tricky @Wits_End. At some point I would like to know the figures for yellow card reports and what has happened to them. How many people...
I would be interested in knowing more about the yellow card system and how it is/is not working. It is the official way to alert medical...
https://www.dailymail.co.uk/news/article-11987487/Gareth-wants-wifes-story-told-died-AstraZeneca-vaccine.html A two page spread about the death...
Another result of vaccine damage, this time a fatality. https://www.bbc.co.uk/news/uk-england-london-65321937 "The death of a doctor after his...
And..... Dr Les Simpson- something different about the blood......diminished red blood cell deformability..... In the 90s.
I am sorry you had such a terrible time @ukxmrv. The lack of healthcare provision you experienced was dreadful. To have to involve an MP for a...
https://www.telegraph.co.uk/news/2023/04/10/bbc-presenter-husband-suing-astrazeneca/ AstraZeneca is being sued by a man whose wife died of...
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