But that is how some of us got our diagnoses of these illnesses. We described our symptoms and lived experience to a specialist doctor and were...
And now dated 2024. This is just mad. Do they expect to get away with it? Of course because they have got away with everything else, apart from...
I agree Peter. Cochrane have no wish to communicate constructively with the patient or scientific community. edit: if I were to be in a position...
Yes but since all the complaints so far have been ignored anyway, I'm not sure the situation has changed. I feel disinclined to jump through...
Thank you @Medfeb for the email.
So it looks as if the role of the Independent Advisory Group was to cover Cochrane's back while they decided what to do.
Would be interesting to know the projected timescale for this study.
The info on the SequenceME thread. " The next phase, involving sequencing of 10,000 participants, requires £7 million in funding" .
How long will this take?
Great letter. Thanks so much to @Peter Trewhitt and @Trish Davis for doing this.
That would be great. Thank you. Will be interesting to see their responses.
Thank you @forestglip. Really helpful.
Thanks @dave30th. Have you seen the response from the Medical Schools Council? edit: I googled and found this; not a response to the Coroner (...
REGULATION 28 REPORT TO PREVENT FUTURE DEATHS THIS REPORT IS BEING SENT TO: 1. Andrew Gwynne / Wes Streeting Department of Health and Social care...
Nath complained vigorously about his own workload around the time the intramural was gearing up and I think said pretty directly that he didn't...
While Sean recognises as positive that the Coroner has been listened to, he describes the responses as "lacking substance". He said: “It is a...
Osler's Web by Hilary Johnson. It's a long book but the level of detail is interesting.
Very pleased to see this. My new MP committed to finding out about the APPG with a view to joining. I have sent this to him.
I am afraid that I gave up (for a while) on daridorexant last night, and took 5 mg of nitrazepam and had a blissful 12 hours sleep. I would prefer...
I have answered yes to the top two choices. I have a heart valve condition which causes breathlessness as does ME especially in pem. The problem...
Separate names with a comma.
