Great interview so thanks @Karen Hargrave and @dave30th. I think the responses to the section 28 results of Maeve's inquest should be posted...
https://www.google.com/search?q=foldalite+trekker+electric+wheelchair&ie=UTF-8&oe=UTF-8&hl=en-gb&client=safari Apologies for brevity but I am...
I had my flu vacc about 2 weeks ago. I asked if the district nurse could call but was told 'no'. I made an appointment at the surgery but failed...
Get well soon @AliceLily .
Do we know how the APPG is developing in the ( not so) new Parliament? I was very sorry to learn that ED Davey would no longer be our MP after...
Thank you Adam. Your selection of key dates and description of significant events together with visual emphasis has produced a clear and...
Today Oonagh Cousins of the #There for ME campaign has posted a blog. Not sure I am in the right place but I couldn't find a thread for the blogs...
@Sisterofpwme - I hope your sister is doing well. I do get GI symptoms and think they have worsened slightly while on daridorexant. I have stayed...
I am still very bothered by the need to shield. We ask workmen to mask, hairdressers etc to test and provide the test kit before visiting, we mask...
Moved post This afternoon was Action for ME's AGM. Chaired by Roger Siddle with the report on A4ME's work being given by Sonia. Despite it being...
Ditto
I came across this voluntary organisation while googling on the RDE hospital site Along with the other hospitals in the area, the team are active...
Ugh! Maybe I'm being too optimistic.
Article in the Times by Fiona Hamilton refers to " family's fear of lack of expertise on ME", Devon Coroner's view that NHS needs to address the "...
Thanks @Nightsong.
The Times, in print copy today page 11, has an article titled " ME patient fears for life in NHS row" referring to Karen Gordon. I don't have the...
I wanted to record that for the last 6 weeks I have been on a very low dose of aripiprazole. I started very low at .1 increasing by .1 a week so I...
Glad you have made progress since having your test and that it was worth your while. Am finding it a bit frustrating because my follow up...
Thanks @Hutan.
Copied post Just to add the I have recently had a sleep apnea test using an NHS wearable, an acupebble. It arrived by post, was worn overnight and...
Separate names with a comma.
