Thank you @MrMagoo. I'll try and have a go.
I am finding this. I now cannot leave home unless Mr B is with me because I can't use the power hoist to get the power chair out of the car. I...
I'll add my hypermobility experience which I have posted before but seems relevant here. I do think it is time we had an answer to this. I...
I hope I 'm not disrupting posts but I wrote this while we were discussing in which specialism to place ME to offer my experiences. We have all...
Yes, me too. I got in touch with the Coroner's Office and was told that the prior Teams link should be used to gain access. No other information...
Also repeating @Trish's welcome, Karen. Glad that you approached @Robert 1973 and fed in some more background to the #ThereforME campaign...
I was pleased to see Professor Lobo's name on it. I haven't seen him but have been seen in his clinic. A highly regarded mainstream doctor with a...
From the direct link...
From the MEA fb page News from the DWP Following on from the story below about the failure of governance at the Royal College of Physicians...
The MEA has a comment about this on their fb page with a link to the BMJ report which is described as a 45 page independent enquiry by the King's...
Is poor governance an issue at many of the Royal Colleges, or is the RCP an outlier? edit: I think what I'm really wondering about is how far the...
Watching the last night of the proms tonight with so many standing in the mosh pit and round the high balcony- well they don't have ME or OI. I...
I sit in a hospital chair and use my wheelchair to elevate my legs so that I am as close to lying as I can. It attracts attention if nothing else...
I'm struggling with the daridorexant. Sleep has hugely deteriorated and I seem to have entered a period of delayed sleep phase disorder. I am not...
I too sometimes have problems just at the moment of going to sleep but it is more temperature dysregulation. I'm in one now, awake after settling...
Thanks @MEMarge. Were there many in person participants?
Thank you @MrMagoo. My memory has erased all but a faint trace of that. i think I was looking for something to be hopeful about but in the process...
I remember Sarah commenting on what Dr Shenton said to her but I am more interested in how she responded to the coroner's questions....and what...
I'm wondering what evidence Dr Shenton will give when she responds to the written questions posed to her by the coroner at Maeve's inquest. What...
https://www.bbc.co.uk/news/articles/czxlpjlgdzjo Meta boss Mark Zuckerberg says he regrets bowing to what he calls pressure from the Biden...
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