I cannot speak to what Acheson was referring to, but I can tell you that neurologists have a whole category of illness called Periodic Paralsys...
@Jonathan Edwards, relative to your two bolded items, I have to disagree. Paresis doesn't only refer to paralysis, it also refers to a more or...
I'd like all ME/CFS research going forward to have better screening mechanisms integrated into their processes. I fear too many conditions and...
What's my point? This. So why confine the parameters of exploring for answers to convention? I think we need to be looking for enteroviruses...
"...off to the races..." Not sure I'm all that comfortable with the gambling metaphor.
Yes, no easy answers with ME/CFS, so the "why" component is pretty much uncharted territory. But a short answer might be that the immune system...
Why? This would be an infection that is built to survive long-term, not kill. Why then would the infected organ necessarily appear diseased by...
Not sure Lipkin looked at tissue. As I recall he looked at plasma and CSF, and he drew a blank for enteroviruses and EBV and HV6 and Borrelia -...
The best book I have read is "Cure Unknown" by Pam Weintraub. But it's a book, not a study. I can direct you to specific studies - like the...
I do not remember much about MCAS, but I know one of my ME/CFS doctors looked for it and had a handful of tests run to check for it. I do not know...
From the frying pan into the fire.
This is somewhat similar to the path I took relative to ME/CFS and Lyme. I am oversimplifying a bit for the sake of narrative, but I got a...
Swollen knees are the foundation upon which much of the concept of chronic lyme was built, unfortunately. To this day, Steere or one of his...
@Woolie, I think the reservations you and others have are that you think the science pretty much eschews the concept of chronic or persistent Lyme...
@Woolie, yes, on paper, there are supposedly symptoms specific to chronic Lyme. The chief one would be swollen knees (yuck - steriotypical...
I'm not sure this agrees with my takeaway from the article. But the short answer is I'm not sure what connection this has to do with mold. But I'm...
@NelliePledge , there are a couple reasons for testing. There are more against it, I suppose, according to some. Were it me, I'd get tested. I am...
Not so fast. I have repeatedly tested with mild brain atrophy on MRI's, but have to fight regularly for disability. I suppose it's a function of...
Not too many of the people that populate forums such as this one.
Yes, dysautonmia ties in with MCAS. Lyme, too. Borrelia is even mentioned as a direct cause of MCAS, as the hufpo article below alludes to....
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