IDSA=Infectious Disease Society of America. The IDSA, either directly or indirectly, informed the UK's Lyme policy in a manner similar to which...
Only if caught early, and even then, the issues are growing (for instance, how to you check for Lyme if only one or two weeks have elapsed since...
Well, don't be satisfied with a report that just says "positive" or "negative". You are in the US, so you have the 2 step CDC diagnostic that...
That is simply not accurate. There is frequently very little routine about Lyme diagnostics and treatment; this is certainly more so if the...
I've had the CD57 test done many times. My infectious Disease doctor is a fan. I have mixed feelings, and I suppose I reflect the greater Lyme...
I did. For years I had pain in the soles of both feet. I went to a podiatrist who diagnosed me with plantar faciitis and gave me inserts. They...
Are you African-American? Not that it matters. You represented us who may or may not be, but are surely not fukuda...
I've heard NIH tales that aren't as sweet, although they are not directly related to ME/CFS. Having said that, there are some tests I would...
This is one history, certainly. I am worried about its telling, not to mention bemused and unsure of its implications when taken in context with...
I think the study has some exciting elements, and other that might be interpreted as downright counter-intuitive, if not unnerving. I have no...
I am puzzled by why pwME who may have legitimate questions or even misgivings should be discouraged from expressing those. This is a forum, after...
Why not just measure balance deficits in CFS vs FM vs CFS/FM? Why bother with anxiety scales etc - are these not byproducts? And why can't they...
Can you volunteer who that researcher is, and whether that paper will be available for non-participants to see - and if so, when? Do you have any...
Sometimes it's only in the rear-view mirror that we see everything, but your point is taken. I applaud your efforts and spirit.
I did not. So that suggests no acute infection. I am sorry, but which pathogens will be included? Viruses AND bacteria AND parasites? Or perhaps...
Fair enough. I've been trying to learn for close to 20 years because I have been appallingly ignorant. Hopefully, I am chipping away that flaw....
Me, too. I'd wager many of us do. Sure, if that is what they are trying to do. Even if it isn't. I am expecting very little of the NIH, and...
The cynic in me might suggest that every disease/condition they can identify in a subject that is not ME/CFS, is one that they can demonstrate is...
How weird is it that my first inclination was to congratulate you on the oligoclonal hit? How were your CSF protein levels? Any pleocytosis? What...
I wonder, @B_V, have you gathered your records from the NIH as they have accrued?
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