Great to hear that!
This is devastating news.
This contradiction is actually written down in the Health care guide to ME/CFS in Sweden which says: patients need to be explained in a...
My family exerts pressure indirectly, due to the fact that they have ”healthy people” type schedules. They try to be considerate of my needs, but...
My sleep pattern has become weird after a big crash last summer that drastically reduced my baseline. I am severe and bedbound. I fall asleep late...
Moved posts Someone asked him about this on Twitter and he replied that it wasn’t weight, but water retention. I really hope he is allright and...
I had major surgery when severe. Nobody knew anything about ME/CFS at the hospital. The anestheologist was kind enough to read up on ME/CFS. He...
I find this deeply disturbing. There was a case in Sweden last year where a woman with ME/CFS took her own life, because she kept being denied...
This gives me hope and strength which is desperatedly needed when you are bedbound, living in the dark, for years. I wish the partners the very...
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I often wonder if I would have avoided becoming severe, had I paced and rested aggressively during the first few years. Instead, I did the...
This is exactly my experience with pacing. Pacing does NOT improve my ME/CFS. It just helps me avoid crashes. Crashes lower my baseline, so it’s...
It would be so interesting to know if the same genes are downregulated in ME/CFS. Will maybe DecodeME answer this question?
I am om both SSRI and LDN and yet I’m still severe and bedbound. These meds don’t even scratch the surface, I don’t know why scientists keep...
This sounds like an excellent plan, I hope they will implement it quickly so that people who are affected actually get help.
This is such an interesting question. I had a very weird experience once, which made me wonder if there is an off switch. Two years ago I had...
I was misdiagnosed for a decade, until I finally got a referral to an ME-specialist, who immediatedly recognized what I had. Until we have some...
I think the same will probably turn out to be the case for people with bona fide ME/CFS. They will have a common underlying mechanism, but with...
At the ME-clinic where I received my diagnosis before it was closed down, they gave patients B12 shots on prescription. I know several people who...
That’s a very good point.
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