Maybe DecodeME will shed some light on the matter. But so far, from what I’m reading, it is clear nobody really knows.
That’s the part I struggle with. How can different biological mechanisms create the same unique characteristic, namely PEM? To me it makes more...
This conclusion shows that ME/CFS is a huge burden for families and society, who become responsible for supporting the individual financially....
I am wondering if someone here would be kind enough to explain what ”subgroups” means in the context of ME/CFS. I hear the word mentioned very...
Sad news.
Sasly, I think all ME/CFS patients suffer some trauma due to disbelief and gaslighting by doctors. I remember vividly during the first years of my...
I might be cynical, but I don’t believe CBT helps at all. Not even in coping with the disease. I did CBT for 4 years when I first got ill in...
I hope it’s ok to post this, if not, please mods be so kind as to delete it. I saw this on Twitter. [MEDIA]
The 1177 healthcare page for my municipality states something like ”a few studies show patients improve with physical exercise”. This is never...
As someone who has been slowly and steadily deteriorating for 14 years I voted ”no”. I think the effects of not being able to recover are very...
I did not meet another patient with ME/CFS for more than a decade after becoming ill. I was shocked to discover other people characterized that...
The article is a disgrace. I can’t believe how tone-deaf he is. He obviously hasn’t bothered to read and understand the criticism. This guy should...
They did an amazing job! I really can’t praise them enough.
I had no pain for the first 10 years. When I became severe, overnight, from two very big consecutive crashes, I also started getting pain. My...
I look forward to seeing this paper published. I listened to an interview with Prof Bergquist and he said something interesting: they are not only...
I felt gutted reading the new guidelines yesterday. So much so that I hardly slept last night. These guidelines are used by doctors all over the...
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