Nep in Dutch means fake. FND was bad, but a NEP diagnose (first sentence) will not be embrased by Dutch patients, I think.
If you want to try: please check first if your bed can be raised on one end that way. I have a wooden bed and I'm not sure if I'll end up on the...
Yes. In other words; the wedge starts, slightly, at your feet.
Have read somewhere, sorry I don't know where, that a wedge form does not help. The whole bed has to be lifted on the head side in order to work....
@SNT Gatchaman had in the lying flat thread (page 3) a way better suggestion for a real functional function of the need to lie flat: to protect...
This is galactic way over my head, but it "feels" very important. An alarm bell that can't or won't switch off in ME/CFS? I hope the better...
You make an important point here. Maybe my brainfog is so bad because I never got the "lie down" signal, because my BP is normal and I'm not...
True ME/CFS? I find that rather offensive. So 25% and higher are not true ME/CFS?
Compromised barrier in glycocalyx/ endothelium, leaky gut, blood brain barriers? We need an army of Hansjes Brinkers(finger in the dyke) to plug...
Costs of Belzutifan 340,950 per year. Just doing more research using this will be difficult.
Afraid of bad side-effects maybe?
This papers sent shivers down my spine, twofold. First in what they found. But second how the "researchers" explain their findings. Maturation it...
Maybe a new blog for @ME/CFS Skeptic, if not already in the making? Iatrogenic (caused by doctors) harm because of FND.
Another very informing and well-written blog @ME/CFS Skeptic, much appreciated! I have had ME/CFS for 33 years and I don't think there will be a...
:hug::hug::hug::hug::hug:
Not a genZ or millenial and after 50 years my German is quite rusty, but in a very fast tempo the host is putting out so much information about...
Sometimes I can find no reason at all for bad days. I even stopped looking for the reason why it happened. Maybe it is just an unhelpful thought...
These "researchers" should never come close to patients again. I'd rather have them arrested for patient abuse and fraude.
Two whole days of training? + travel? After two whole days how many of us would be able to answer any question at all?
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