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  1. Sunshine3
    Post

    Naltrexone restores impaired transient receptor potential melastatin 3 ion channel function in NK cells from ME/CFS patients, Cabanas et al, 2019

    It definitely helps some but not all of us unfortunately.
    Post by: Sunshine3, Oct 21, 2019 in forum: ME/CFS research
  2. Sunshine3
    Post

    Naltrexone restores impaired transient receptor potential melastatin 3 ion channel function in NK cells from ME/CFS patients, Cabanas et al, 2019

    God you'd swear they just discovered ldn and it was brand new... I've no faith in this gang. They are good at blowing their own trumpet I'll give...
    Post by: Sunshine3, Oct 21, 2019 in forum: ME/CFS research
  3. Sunshine3
    Post

    Researcher Interactions Video: Science for ME Q&A with Dr Michael VanElzakker, Oct 2019

    Many pwme have tried mestinon to no avail.
    Post by: Sunshine3, Oct 20, 2019 in forum: ME/CFS research news
  4. Sunshine3
    Post

    Naltrexone restores impaired transient receptor potential melastatin 3 ion channel function in NK cells from ME/CFS patients, Cabanas et al, 2019

    Strong or long lasting pain. I have severe M.E. but I don't have pain. More subsets I guess.
    Post by: Sunshine3, Oct 19, 2019 in forum: ME/CFS research
  5. Sunshine3
    Post

    News from NIH: ME/CFS Webinar - October 17, 2019

    Develop a process for generating a strategic plan... Sigh. A process??
    Post by: Sunshine3, Oct 19, 2019 in forum: General ME/CFS news
  6. Sunshine3
    Post

    Open Trial of Vitamin B12 Nasal Drops in Adults With [ME/CFS]: Comparison of Responders and Non-Responders, 2019, van Campen et al

    Funny.. Thanks for the giggle!!! My own b12 levels are well above normal range due to supplements and I've steadily declined in past 3 years...
    Post by: Sunshine3, Oct 17, 2019 in forum: ME/CFS research
  7. Sunshine3
    Post

    USA: Center for Solutions for ME/CFS - news and updates from Columbia University's NIH funded center

    Yay for a positive reply!! I thought he came across well, I really think we have to appreciate any pluses that come along.
    Post by: Sunshine3, Oct 11, 2019 in forum: News from organisations
  8. Sunshine3
    Post

    Effectiveness of distant healing for patients with chronic fatigue syndrome, 2008, Walach et al

    We so need a diagnostic test. This is a complete and utter circus. I can't take much more of this absolute BS, it actually beggars belief.
    Post by: Sunshine3, Oct 3, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Sunshine3
    Post

    Researcher Interactions Question collection thread for S4ME Q&A with Dr Michael VanElzakker

    @Andy I know it was mentioned above the whole glutamate picture. I'm so interested in his thoughts. I'm severe and klonopin helps me, it helps me...
    Post by: Sunshine3, Sep 30, 2019 in forum: ME/CFS research news
  10. Sunshine3
    Post

    Is ME a metabolic problem or a signalling problem?

    If that's the case, it sounds like something that would be extremely complicated to treat imho
    Post by: Sunshine3, Sep 30, 2019 in forum: ME/CFS research news
  11. Sunshine3
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    I'd be glad of treatments in 3 years.. Very glad. I don't really expect a cure.. I'm sorry you are disheartened @Perrier. I think we have to just...
    Post by: Sunshine3, Sep 9, 2019 in forum: General ME/CFS news
  12. Sunshine3
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    That wasn't the impression he gave at Symposium.. He had identified 5 ME subsets. It seemed that he had alot of work done.
    Post by: Sunshine3, Sep 9, 2019 in forum: General ME/CFS news
  13. Sunshine3
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Relieved to hear this explanation. Thank you @Sing
    Post by: Sunshine3, Sep 8, 2019 in forum: General ME/CFS news
  14. Sunshine3
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Can anyone tell me if the metabolic trap is still a viable hypothesis or is it gone out the window?
    Post by: Sunshine3, Sep 8, 2019 in forum: General ME/CFS news
  15. Sunshine3
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    I was impressed with Alain Moreau's presentation. I missed most of the others but he left me with a feeling of optimism. I agree @strategist...
    Post by: Sunshine3, Sep 8, 2019 in forum: General ME/CFS news
  16. Sunshine3
    Post

    3rd Annual Community Symposium on the Molecular Basis of ME/CFS at Stanford University, sponsored by OMF, 7th Sept 2019

    Disappointed that Jarred Younger can't attend...
    Post by: Sunshine3, Sep 6, 2019 in forum: General ME/CFS news
  17. Sunshine3
    Post

    USA:NANDSC Working Group for ME/CFS Research report, September 2019

    I liked the presenter Steven Roberds.. Hopefully he will stay working with us..and actually care enough to push things along.
    Post by: Sunshine3, Sep 5, 2019 in forum: General ME/CFS news
  18. Sunshine3
    Post

    USA:NANDSC Working Group for ME/CFS Research report, September 2019

    Thank heavens it was approved... Way too much emphasis on fatigue yet again.. Walter's comment on the marathon runner actually made me break into...
    Post by: Sunshine3, Sep 4, 2019 in forum: General ME/CFS news
  19. Sunshine3
    Post

    The NIH ME/cfs working group will videocast report to NINDS

    I so hope that act on some of this, that it won't be left aside gathering dust
    Post by: Sunshine3, Aug 29, 2019 in forum: ME/CFS research news
  20. Sunshine3
    Post

    Canadian Federal Health Minister to make announcement regarding ME, August 22

    @rvallee have u any idea when we will know if Alain Moreau's research proposal has been granted funding?
    Post by: Sunshine3, Aug 26, 2019 in forum: General ME/CFS news
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