I don't have a good understanding of all the goings on but is there a danger that the WHO will remove ME from the 'neurological' category into...
Has anyone seen any improvement giving up sugar? I have leaky gut and obviously should be cutting down but I am addicted. I find that a cuppa and...
@Action for M.E Clare, you do realize that people are dying from M.E....Merryn Crofts, Ian Rudds were recent deaths. M.E can be life threatening...
Agree, we have to start somewhere
How do they plan on getting accurate numbers when we have no definitive diagnostic criteria that is used by medical practitioners? Alot of doctors...
@JaimeS
@Hip are you hopeful about the cortene venture?
I have emailed Dr. Nath and Brian Wallitt and both replied to my questions and were helpful. Dr. Nath didn't answer my most recent question about...
Severe ME is no gift, I don't care how much empathy you gain.
Gift!!! No thanks. Its torture.
https://www.cellmedicine.com Stem cell therapy in Panama which isn't life threatening. They use umbilical cord stem cells....
As they use stem cells from patient's blood, as it is unaffected by MS.....I wonder does that exclude ME patients from something like this as we...
I agree, I think we've had some mixed messages. It started off fantastic, great expectations....its like the air has gone out of the balloon...
Thanks Gary. I just had flashbacks to Martine McCutcheon. Appreciate the clarification.
@Gary Burgess I get very concerned when I read 'getting better'.......as Trish said, so many of us don't get better, in fact most with ME as...
Excuse my ignorance but is this good news or are we not sure yet?
Thanks Liv xxx
He uses Fukuda criteria
Yes!! That's me. I am a newbie and have been suicidal and still sometimes feel like escaping due to the hopelessness of MUS, stigma, no help...
Such a horror show
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