1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for 'CFS'.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 21st April 2025 is here.
    Dismiss Notice
  3. Welcome! Read the Core Purpose and Values of our forum.
    Dismiss Notice

Search Results

Search Again
Page 2 of 2
  1. Theresa
    Post

    Gentle(st) stretching routine

    There might be some useful ideas in this file also.
    Post by: Theresa, Jun 19, 2023 in forum: Home adaptations, mobility and personal care
  2. Theresa
    Post

    Works of fiction where characters have ME/CFS

    There is a novel Falling through the World by Rachel Clarke published in 2012, I can't remember what I thought of it but it has positive reviews...
    Post by: Theresa, Oct 30, 2022 in forum: General ME/CFS discussion
  3. Theresa
    Post

    OP72 Myalgic encephalomyelitis/chronic fatigue syndrome and pregnancy: a mixed-methods systematic review 2022, Pearce et al

    The error is only in the abstract , the paper itself seems correct?
    Post by: Theresa, Sep 23, 2022 in forum: ME/CFS research
  4. Theresa
    Post

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I think either a copy of the new UK NICE guidelines or even just a reference to an online link for them would be good.
    Post by: Theresa, Apr 8, 2022 in forum: General Advocacy Discussions
  5. Theresa
    Post

    What differentiates ME/CFS from known primary mitochondrial diseases; could mitochondrial disease cause PEM?

    Merged thread Could mitochondrial diseases cause delayed PEM? Hi, Sorry I don't know which area of the forum I should post this question in,...
    Post by: Theresa, Dec 10, 2021 in forum: Possible causes and predisposing factor discussion
  6. Theresa
    Post

    Sick of the Sick Role: Narratives of What “Recovery” Means to People With CFS/ME, 2020, White et al

    I agree about therapists sometimes providing unhelpful ideas but there really isn't any such thing as an accountant handing back or losing their...
    Post by: Theresa, Nov 14, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Theresa
    Post

    CBT combined with music therapy for chronic fatigue following Epstein-Barr virus infection in adolescents: a feasibility study, 2020, Wyller et al

    I can't work out how to link it here but in the full text of the article a bit under the subheading "Therapists, techniques and principles in the...
    Post by: Theresa, May 11, 2020 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Theresa
    Post

    Diagnosis of mast cell activation syndrome: a global “consensus-2”, 2020, Afrin et al

    According to Wikipedia Afrin suggests that MCAS could cause spontaneous human combustion, presumably there is no such thing and that cannot be a...
    Post by: Theresa, May 1, 2020 in forum: Immune: Autoimmune and Mast Cell Disorders
  9. Theresa
    Post

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    One of the interviewees makes a good point about ME not being an invisible illness but that it is the lack of knowledge and acceptance making...
    Post by: Theresa, Feb 29, 2020 in forum: General ME/CFS news
  10. Theresa
    Post

    ME/CFS in UK medical textbooks (Psychiatry)

    Doctors are definitely too quick to diagnose sometimes or to assume psychological causes, however I think a diagnosis that says they don't know...
    Post by: Theresa, Jan 27, 2020 in forum: General ME/CFS news
  11. Theresa
    Post

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    At least it refers to a Canadian psychiatrist having a position on mass hysteria that is based on emotion and ignorance, I would guess this is...
    Post by: Theresa, Nov 29, 2019 in forum: Other health news and research
  12. Theresa
    Post

    Complex Regional Pain Syndrome (CRPS), what to do?

    Apologies, yes, it is the wrong URL, this is the one I meant to post: Complex regional pain syndrome and functional neurological disorders –...
    Post by: Theresa, Nov 12, 2019 in forum: Other health news and research
  13. Theresa
    Post

    Complex Regional Pain Syndrome (CRPS), what to do?

    This is a link to an article discussing a potential overlap between CRPS and FND, I don't know enough about either to judge whether the article is...
    Post by: Theresa, Nov 12, 2019 in forum: Other health news and research
  14. Theresa
    Post

    'Controversies and Cock-ups in ME research: The Role of Human Failings' - Prof Brian Hughes to speak at Sheffield ME & Fibro Group Conference

    I haven't been able to watch it apart from the beginning, but I don't think @Brian Hughes is correct to say PACE was based on a psychiatric...
    Post by: Theresa, Oct 25, 2019 in forum: Advocacy Projects and Campaigns
  15. Theresa
    Post

    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Here is an article on the same topic, but with a non-dualistic approach - "The neurology of the Cuban "sonic attacks"...
    Post by: Theresa, Jul 7, 2019 in forum: Other health news and research
  16. Theresa
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    This paper contains an interesting discussion of the evidence/lack of evidence for hEDS, POTS ,MCAS and the links between them...
    Post by: Theresa, Jul 5, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  17. Theresa
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    If there is no real evidence that hypermobility EDS is a valid diagnosis, which I accept there doesn't appear to be, I can't help wondering why...
    Post by: Theresa, Jun 8, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  18. Theresa
    Post

    Building an evidence base for management of severe ME (including sleep management)

    I think having achievable goals for each day no matter how small is helpful and also somethi g positive to aim for in the longer term if health...
    Post by: Theresa, May 10, 2019 in forum: ME/CFS research
Find older messages
Showing results 21 to 38 of 38
Search Again
Page 2 of 2