Agree on this. I think demonstrating the full cycle of PEM and nailing if possible the link to deterioration is important
I’m not 100% sure. I think those who do that to us just reach gif that one as stage one in sophism it doesn’t mean if you fix it they will shut...
:hug: not looked yet but thanks for heads up I now feel like when you don’t know whether to peer between the finger of your hands you put over...
Yes I always assumed that was the mindset of medicine and that they’d be curious to hear about my careful observations when I was ill etc coming...
Thanks Hutan I thought it made sense but to wade in as I might have missed these being discussed elsewhere. I’d be intrigued given the what do...
I was that latter group I would have thought when I’ve been less unwell. I had to live a life of PEM and rolling PEM and was firmly moderate but...
If you break your leg then how it was broken normally isn’t the main lead to how to fix the leg ie treatment same for any other illness....
So frustrating or maybe interesting if we had more detail on the patients and what they’d done in the lead up eg to see severity and get a sense...
The thing is if they have some funding or sponsorship from somewhere whether it’s full time or just coaches of equipment.. well we all know how...
Is this the full / official list? I don’t see the Yorkshire fatigue clinic or the George Eliot Nuneaton clinic I was interested to look up both...
Are there any M.E. specific or friendly journalists who could do a good job of getting out the story in a few different angles something like...
Yes this is the perpetrators of something that did and continues to do harm directly via their treatments and directly via their spreading of...
A lesson in sophism isn't it. Almost like a philosophy exam where you have to learn the different aspects of fallacial argument and reply like a...
I think these sort of things are really important documents for us to develop. And get specific for different severities/situations if necessary....
This is where the complication arises. There is disability and paralympics. I have to be really careful here but I think the point is that these...
I agree that it could be walking into a trap if those in charge are not sufficiently prepared from all angles. Even if they get the nuance spot...
thanks for the info I'm not on the ball enough to day to read this through for the exact nuance that it very much deserves. I absolutely agree...
yes sorry, I've added a note, just not up to it/feeling good enough right now, so hadn't even checked out whether I could access it. Uggh well...
Well that’s one way of switching the term I hope they are going to tackle those lumped and dumped I just feel cynical of those not with my best...
Yep it feels like certain people who always have their hands out whenever anyone new comes along pretending it wasn’t them last time and the time...
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