me too also very much depends on stage of where my health is at (on way down then I don't think so - by which I mean 'you've done enough normally...
Me too on the leg-focus particularly as part of PEM and if I've had my legs down. I find this one really quite interesting. Does it help with...
Do we think it could help there? Certainly if so and the dose could be got right to minimise risk then I agree something with measures in that...
Informative that one - the mode of learning chosen indicates to me that it is either someone's beliefs (they won't do it, worse assumptions that...
Of course the first question this brings to mind is how much funding is being given to biomedical research into this area vs 'treatments to cope'...
I could say so much about this issue. Sort of leads back to an attitude of seeing people as objects like the old days circus exhibits to be...
I'm not sure. That would be an interesting one to see, probably, but to different degrees. I think a lot will be in 'rolling PEM' and I think boom...
Malaise is good in its precise definition, but as with everything else laypersons and BPS have warped that into something very minimised. Worse...
This second paragraph is really important insight. I keep trying to note every so often that we need to be emphasising that the key characteristic...
Yes! before even I knew what was going on (so was desperately having to trudge through and keep doing), there was a point where someone noted to...
Second this: "you always ended up with really bad tonisilitis (or something similar after tonsils were removed) every time you had a night out, or...
This is an important question to ask as it is exactly this we need to get others to understand. Particularly right now, as BPS are currently...
thanks for confirming. it is hard to remember back. A bit of thinking back to when I wasn't quite as ill as I am (showering is now very much a...
Link to article: Many mental-health conditions have bodily triggers (economist.com) I'm afraid this is paywalled for me so can only see the first...
This came up as an advert on fb: The Economist - A revised understanding of psychiatry could have... | Facebook Which I thought was interesting,...
what that would actually be useful for depends on whether some gnatty people who are very experience at living with ME/CFS at different severities...
Yeah I must say I didn't get into this, so can probably agree on the idea of it being crazy-making, and have even been a bit cynical about when...
Tricky isn't it. I'd describe the PEM-type cognitive fatigue / 'brain fog' (which is why that term is unhelpful and almost makes me laugh) as...
and ripe in the bigoted to self language in an attempt to stay accepted. You might well have a point there. The difficult thing is she is working...
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