Problem is the way the Facebook threads are working for these - because of the way the project is being sent via email so it doesn’t have a big...
This a massive impact one the way it could be used is the issue. Ie a tool that could be used to undermine the progress made - and tbf was...
Indeed it’s 50% less than before - so a lot of very fit or able people often g eg hidden under that ‘but you still pass the tests so you can’t be...
Yep there’s the issue with most of the ME/CFs stuff - not just juniors, yet you’d hope the fresh blood might have spotted it or have been keen to...
Spot on
This
well.... I use ME/CFS because the new Nice Guideline is ME/CFS (where the old one is CFS/ME) if the HCP I'm meeting is going to google it etc....
I've got the following from the news item on AfME webpage: So was he the consultant for the Devon ME/CFS specialist service for a long time...
SO you'd think he'd had a good lot of involvement with ME/CFS for a while before then? @Cinders66 I'm guessing the research or 'working on' CFS...
It might be my memory vs a lot has happenned over the last few years, or just I've missed it but can I ask the question of why David Strain is...
sort of brings things alive in a number of ways realising this. Or a lot of questions that maybe if more clinics are doing similar things is a...
I just found this on MEAction from 2019: Appendix-5-Your-experience-of-ME-services-report-by-MEAction-UK.pdf which has collected feedback about...
Just spotted this, which is pediatric CFS from 2019 but I couldn't believe any presentation was claiming recovery stats of 60% recover in 6months...
As a wild card, just to ask the question: WOuld changing to 'Chronic Fatiguability Syndrome' - if done with enough of a campaign about it - be a...
I thought it was technically much better. However, I also sadly am close enough to seeing the dark side of human beings that the 'exertion...
writing a short text. one which you wouldn't habitually do a gazillion times and be able to 'mimic' the norm for, but with enough you'd have to...
Time just passes faster for me when exhausted. Hence I have a screwed sense of time without directly checking the time, because ...I assume......
does anyone else habitually shoulder-barge door frames or (particularly corners of) walls when more tired (I know but I need that word to describe...
A cynic (and the ME Association if they were being on the ball) would be wondering whether this is going to be used to justify funding for...
It always should have been someone like @PhysiosforME or Workwell etc who understood the condition overseeing something like this whether they did...
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