[MEDIA]
YES! I completely agree with this and have been saying it for a long time. Careers, egos and reputations must not be prioritised over patients’...
I thought I would use this opportunity to give Dr Phil Hammond another prod: [MEDIA] [MEDIA] By endorsing a charity which has signed the open...
I agree that: - The statement is a welcome step in the right direction - It is a mistake to endorse BACME I would add that it is possibly unwise...
Another potential signatory to @dave30th Open Letter to The Lancet: [MEDIA] [MEDIA] [MEDIA]
No I didn’t! Must have been someone else but thanks for alerting me. Just to add that I fully support @JohnTheJack’s letter, although, for the...
Need to be careful here. The FTT found the allegation of threats from activists to be unsubstantiated. However, I think it may be accurate to...
I used to assume that was the case. I used to assume that there must be some people being diagnosed with ME/CFS who had something very different...
Many thanks for posting this, Amy. I am sorry to hear about your negative experiences. I have not followed everything that you and your family...
In my response, I was in two minds about whether to refer to specifically biomedical research or not. On the one hand I wanted to emphasise that...
Don’t tell anyone, but that’s me. Thanks.
Do you think the pluralisation of syndrome was a typo or deliberate? Is he suggesting there are different chronic fatigue syndromes? I’m not...
I think this is a good idea. If you wrote a short blog asking people to write to their MPs and telling them how to contact you, I’m sure the...
@dave30th I wonder if this presents an opportunity for you to get the letter (or an abbreviated version) published in the Times as a Letter to the...
I’m very sorry to hear about your cancer, Jo. I didn’t know. Given the heterogeneity and the number of people who are diagnosed with ME and then...
What I meant by a continuum is that the illness is defined as a threshold of a variable which is also present in the healthy population. In the...
When somoneone in the UK says they were diagnosed with ME for a long time before they were eventually rediagnosed with Lyme disease, you can...
Thanks for this post, Luther. I had thought about the idea but I hadn’t come accross the term before. Yes, this is an example of success or...
Yes, I’ve made this point before, and it’s worth repeating: if there are 250,000 ME/CFS patients in the UK and 15-30 million worldwide, if each...
I would also add that one of the things that I’ve had learn to endure as a patient is how to deal with the volume of advice I receive from very...
Separate names with a comma.
