Me and @yannlk have written a lot about the group of patients propagating these kinds of views in this thread:...
Topple didn’t write this one - it was another writer called Hannah Sharland who I haven’t heard of, but you’d imagine Steve had some input. (Full...
The Canary, and Steve Topple in particular, has provided some absolutely excellent coverage on ME and Long Covid. This article sadly bucks that...
FND is all or nothing in a way that viral persistence isn't. If biological mechanisms drive Long Covid and ME, these conditions aren't FND -or...
If you want to get some sense of what LCAP is like scientifically, this substack from an LCAP-adjacent figure who has fallen out with LCAP is...
I followed this post and it's difficult to understate just how abusive and nasty some of the responses were from members of LCAP and LCAP adjacent...
I disagree with the comparison to FND. There have been quite a lot of viral persistence studies at this point, so we do know that viral...
A commentary on that study was just published in the Lancet. Nice and understandable for people like myself whose main scientific qualification is...
My biggest problem with the study is that I have little idea what they mean by ‘Long Covid.’ I know of people who have brain fog post covid but no...
LCAP is by far the least serious part of the Long Covid patient movement. It's almost difficult to know where to start with them. - They have...
I also help run a support group for young adults (18-33) with Long Covid and ME/CFS. But before participating or sharing this in that group, I'd...
Hi - I’m 25 and developed ME/CFS following a Covid infection. Would you accept people who have a dual Long Covid and ME/CFS diagnosis? Also, what...
Very much agreed that focusing on specific phenotypes - post-hospitalisation Long Covid, post-covid ME/CFS, post-covid POTS and so on - will be...
If this passes, it would change *everything.* Sure, RECOVER has spent its funding badly, but that was somewhat to be expected given that they were...
It's very paternalistic - he talks about people with Long Covid and autism/ADHD in the manner of a 19th century anthropologist talking about a...
"Garner, a friend of mine" - says it all. It's also rather funny that they identify the two key drivers of Long Covid as a) "the biomedical...
Abstract Outcomes following SARS-CoV-2 infection are variable; whilst the majority of patients recover without serious complications, a subset of...
And here is an accompanying commentary that concludes with a hint that exercise therapy should be prescribed for ME/CFS (though they somehow omit...
Importance Many patients with post-COVID condition (PCC) experience persistent fatigue, muscle pain, and cognitive problems that worsen after...
Worth noting that Nature Scientific Reports isn't a particularly prestigious journal @dave30th, it's by far the least significant publication...
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