I guess it's a standard process to check for scammers. If they are going to do a work capability assessment they should warn you. I think it would...
I am probably one of the people you are referring to who criticises some studies without reading beyond the abstract. The point your comment...
The 6 minute walk test in is uniterpretable in PACE because too many didn't do it at the 12 month stage.
My response would be 'involve S4ME members or other expert patients in the research design from an early stage'. And don't use questionnaires,...
Yes, all perfectly rational responses to having LC. Nothing to do with a made up disorder called SSD.
Surely all the so called association between SSD and LC is simply an overlap in questionnaires.
Someone swallowed the dictionary for breakfast.
The Australian Griffith University team have been publishing papers on calcium channels and claiming it's a biomarker based on very small studies...
I think if I were doing it I would contact the publications as soon able to, and hope that a journalist thinks it's an interesting enough story...
Welcome, @phantom. Thank you for joining us to share your experience of the clinic.
That seems a pretty daft experiment. What about the after effects of the extra exercise? What about the longer term effects of extra activity...
I'm not sure what you are arguing here. The trials of exercise based therapies for ME/CFS have uniformly failed to show benefit. Large surveys...
That's an excellent and very powerful letter, @Wyva. I hope they take notice and make changes. You are doing a magnificent job of standing up for...
It's a very long time since I studied stats, but that argument doesn't immediately make sense to me. What difference does it make whether you...
Sadly I think we have seen that problem consistently across almost every psych and exercise intervention. We need such trials designed with an...
I have skimmed the article and looked at the data. As far as I can see there's no correction for multiple comparisons, and the ones that seemed to...
@Beth, thank you for sharing your experience. I'm really sorry to hear the stats about young people having a better chance of recovery have been...
A big flaw in the 2007 diagnosis is giving PEF as an alternative to PEM.
Some posts have been moved to Brain Retraining treatment for ME/CFS and Long COVID - discussion thread
The other hemisphere, heading into autumn, I think.
Separate names with a comma.
