Press Release: Leading UK Charity invests in Canadian trial of drug treatment for ME/CFS and Long Covid It's not a new trial. It's the one Luis...
The MEA wrote to the DWP with concerns about the benefit changes. The reply links a DWP green paper consultation. Consultation survey | Article
To me, the worsening of some symptoms with any exertion that necessitates rest breaks, and I can do about the same amount on following days is...
@Friendswithme thank you for your response. I find it interesting reading your perspective. I note two things you might like to respond to....
No. Its a hypothetical construct which people can only guess at, and find to our cost with PEM that we've got it wrong this time. Many if not most...
A flippant response is we won't get overtraining syndrome, or break our backs diving into shallow water or die from heat exhaustion while on...
I have a feeling we've had this discussion multiple times before. Out of curiosity I looked at Phoenix Rising, a forum some of us belonged to...
Ergh. Me too. Very distressing.
Sorry, yes, I misremembered. I can't find the study I meant to link.
The problem with pacing up as applied by at least some BACME members in UK clinics is it isn't just the sensible doing a bit more when your health...
I am pleased for you that you have recovered. Perhaps, instead of telling us to read a book, you might like to do a thread in the Introduce...
I looked up the author. Mats Lekander is a professor of health psychology at the Department of Clinical Neuroscience and researches the...
Added.
This is the ME Association's response to the BACME position paper....
Have you seen this thread? https://www.s4me.info/threads/pacing-up-why-its-as-harmful-and-unevidenced-as-get.42006/ The therapist to whom I was...
There are hundreds of 'popular science' books with all sorts of theories, many of them wrong and based on a mix of anecdotes and poor quality...
Surely asymptomatic ME/CFS is a contradiction, since symptoms are required for diagnosis.
Wouldn't that have shown up in the outcome data from all the various BPS and drug treatment studies? If people not recovering were the rare ones...
For me tired but wired refers specifically to when I'm trying to get to sleep at night and am very tired and needing sleep but my brain is wide...
A useful analogy for discussion, but I think it's much more complicated, as no one knows which person with which mental or physical illness will...
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