ME Research UK: A quote by Dr Avi Nath has left many disappointed. “…the population affected by #longCOVID is so much larger and the symptoms...
ME Research UK: Although research has linked low socioeconomic status (SES) – a measure of economic and social status, with an increased risk of...
Maeve’s inquest was a whitewash and the coroner betrayed everyone living with ME/CFS...
Some info https://www.actionforme.org.uk/news/new-online-learning-for-gps-on-severe-me/
This is from this study: https://clinicaltrials.gov/study/NCT03952624
https://www.frontiersin.org/journals/medicine/articles/10.3389/fmed.2024.1429275/full ORIGINAL RESEARCH article Front. Med., 12 August 2024 Sec....
I don’t know anything more at the moment but it sounds very specific to be made up @EmergeAus has green lit this study: 'Examining the...
[Not sure whether CFS was rigorously defined or not] https://www.chinagp.net/CN/abstract/abstract8440.shtml Characterization of Intestinal Flora...
Tuteja AK, Leung DT, Fang JC, Talley NJ, Stoddard GJ. Randomized double-blind placebo-controlled study to evaluate the effect of long-acting...
This Severe ME Day, patients are still dying in hospitals as the world walks by https://www.thecanary.co/opinion/2024/08/08/severe-me-day-8-august/
https://epub.technikum-wien.at/obvftwhsm/content/titleinfo/10192639/full.pdf MASTERʼS THESIS Thesis submitted in fulfillment of the requirements...
Tweet reads: A painful irony: The inquest hearing on the death of Maeve Boothby O’Neill took place during Home Artificial Nutrition awareness...
“Have a detailed care plan and advanced directive they can follow which CLEARLY states your wishes should you be incapacitated or unconscious and...
“Which brings us to the need to have an advocate. If you have the luxury of choosing your advocate (many of us do not) you want to pick someone...
“When you are hospitalized - you give up your agency. You are put in the control of doctors & nurses who may have limited understanding of your...
(Also shared to the Sussex & Kent ME/CFS Society thread:...
For what it is worth: Source: Sussex & Kent ME/CFS Society Date: August 9, 2024 [Press release] Very Severely affected ME Patients...
"August 2024 International Research & Advocacy Roundup" from Emerge Australia...
I don't think a paper has so far been published using this data. She references a lot of well-known figures from the ME/CFS world in Australia in...
https://vuir.vu.edu.au/48562/ Investigation of the Gut Microbiome and Host Metabolome in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
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