I’m thinking more social media campaigning, going viral with a slogan, then releasing a press release what is “psychwashing”? The disturbing...
This topic has been split from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023...
Psychwashing
I think I said elsewhere, ME (and suspected ME/“meets the criteria for, etc) needs to supersede everything else. Because there’s a lot of...
I think the idea for a Jigsaw of insidious double-speak treatment is a good idea.
I believe the BACME guidance says something at the front that AforME and the MEA have contributed/approved? I can’t find it now, maybe I’m mixed up.
Wow thank you for sharing your story. I’m sorry you’ve had to fight that hard.
Maybe in each case the first thing to do on attending hospital is to request reasonable adjustments, based on PEM and sensory. These are...
Can we/Millie’s supporters get the Coroner in Exeter to do that now before the inquest, so it can help? https://www.devoncoroners.org.uk/
This is the danger with a “diagnosis of exclusion”. You can later overturn it, by arguing it was wrong as the true diagnosis is psychological.
Oh, but a coroner can’t do something for Millie McAnish who is in hospital now, in a different area. Maeve’s inquest is not until July in any...
Is the coroner involved? There has not been a death.
So are the NHS able to override and/or disregard a private diagnosis?
I had noticed in the reporting somewhere it said something like “it is claimed she has ME/CFS” can’t remember where, might do a little review. It...
How many times will this wheel be re-invented? NICE published its Baseline Assessment tool in 2021 (Baseline in the classic sense, not the...
I’m trying to imagine other Clinician groups creating guidance with the option to include WRAP How might the public/patients react? If you...
Yes well my cat may be useful.
Yes - a bit like the deflated look of a new Dr when they ask if I’ve had my vit D levels checked? and I point out I take it daily, have done for a...
We know that pwME are considered disagreeable, and resistant to “treatment” by healthcare professionals particularly ones of the BSP persuasion. I...
“Just pick out the bits you can eat” my life as a vegetarian who always gets served meat “Just pick out the bits you need” my life with ME in an...
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