I have to wash my hair otherwise my scalp cracks and bleeds, so I have to wash every day. I wear pyjamas every day, change once after shower. Only...
I once used hypnotism to cure a phobia, and calmly chanted myself into actual danger whilst not being “afraid” of something relatively harmless,...
It’s the mystery of the “baseline” isn’t it. According to Visible app, and the workwell foundation paper it’s based on, my baseline is far lower...
It’s just a crazy revelation, too. Everyone “should” be doing much less than we’d think, for our own good.
Amen. at the risk of going circular, I am an unreliable narrator however my Visible and my Fitbit give me an at-a-glance graph/data/csv download...
I suppose it’s useful in a way. I have a guideline which shows what is “too much” whereas usually people assume you’re doing nothing because you...
Yes, I tend to have to “prep” in order to have a “day off” I don’t know why I thought it would be easy? My allowance is enough to look after...
Thanks, I’m not great with the quotes but this is what I was saying. Anything can be “evidence” a photo of my unmade bed can be evidence. Not...
Yes-that’s it thanks. edit to add -point 2 of Sarah’s reply “at no point…research outcome measures” In the MEA news item yesterday, I think it...
Oh he’s really going for it. I don’t think they’re going to do an inquiry into themselves, give it another 20 years so the plausible deniability...
It’s all a bit much for me just now, but there was discussion with Sarah Tyson about some question having an answer along the lines of some,...
So it seems Gladwell was working on this report, evaluating the Chalder Fatigue Scale, prior to the pandemic. Luckily, it’s shown that it has...
Statement by Sarah Tyson
A report is out https://meassociation.org.uk/2024/04/patient-reported-outcome-measures-proms-in-me-cfs/ just going to read it This is Gladwell’s...
I’ve been making an effort to try to do one day per week under my daily allowance. Of course, I could always alter the daily allowance myself, but...
I hate that it looks like they’re going to go through what we went through.
Currently on MEA’s insta stories - the name in the link says it all...
Good to know
Side-question Did PACE ever address sex differences? I only ask because I become very exhausted when I have a period. That’s always been the case,...
But Sarah Tyson said he is a “good bloke” who “gets it”. I think a side-by-side of this PROMS against NICE 2021 guidance will be needed, I feel...
Separate names with a comma.
