Somewhere in the NHS PROMS info, they said the data identified recovery time was quicker where a certain brand of replacement hip was used, so...
I was rooting around the published accounts, I see the MeA also employed an additional short term employee to “embed” the 2021 NICE guideance...
I feel like they aren’t being transparent. Because they’re not.
I think there are at least two different things happening with this issue and this thread. 1. The MEA have funded Tyson et al to do a piece of...
Aren’t many ME clinics staffed by OTs and Physiotherapists anyway?
I’m convinced (my opinion only) there is more to this, the PROMS will be used in the Long Covid clinics and in a few years the NHSwill be crowing...
Definition of madness, doing the same thing repeatedly and expecting a different outcome!
I feel like the “and long Covid” part of this whole thing is relevant, too.They’re rapidly being chucked in with us and having some tick-box “82%...
but the clinic won’t accept them as a patient
This is true, but the point being - why are services which won’t accept severe/very severe patients asking a PROMS question about if your illness...
I thought there were no services for severe/very severe in the NHS? The first question on the PROMS Sarah showed was to categorise the level of...
I think the MEA needs to clarify why they funded this. It’s becoming less and less like the biomedical research they claim to fund.
Sarah Tyson explained what the gold-standard techniques were earlier in the thread.I think they’re applying the gold to the outcome measurement...
We’re supposed to be able to give the data or health reports to our clinicians - like they care- so they can help us. Good luck with that.
I think the FUNCAP is supposed to gather like 12 months of data, it’s to give a view over time if things vary (or not) we all have better or worse...
The health reports are different, they’re generated from your info. It should be above health report on the profile page. Maybe the monthly...
I thought the letters were brilliant, thank you for all your hard work!
And a discussion from the other thread - how does funding PROMS fit the MeA’s criteria. Some suggestions were made of how they might argue it...
Some PROMS info from NHS data...
Does anyone really measure how they’ve been in “a month” I can do days, maybe weeks as a summary of great/good/bad/awful or whatever scale, but a...
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