I’m wondering why TPN was offered late September. We heard how it wouldn’t be safe, would cause sepsis which would be fatal, earlier on. Was it...
After years, I met an optician who explained to me that my eye muscles (there are 6 in a ring around the eye) don’t function as usual, they don’t...
This is very true, I’ve had experience of the Guardian saying nothing supportive, but silently changing editorial direction. They’re very risk...
my bold - going to write this out and put it in my wallet in case of hospital admission. This is why, whenever you get something minor done like...
Here’s my twitter notes from Friday. Thanks to ME Advocates Ireland. Statement read by Kate Jenkins nurse and clinical matron RD&E She will be...
Yes but they’re all becoming eligible for a free bus pass and pension
They know the tide has turned and that’s why the best they can do is that “I’m an agreeable chap, let’s all join together” bit by Miller. Whilst...
A short piece on Channel 4 news [MEDIA]
If we start from the theory that ME isn’t one thing, it’s a collection of illnesses which overlap or are similar, makes sense that some people...
This is the thing, to some extent we’ll have to manage our expectations about the outcome as it will never go far enough for us. My “work brain”...
This, thank you. The Coroner will likely conclude medics/DCC didn’t have appropriate training or knowledge. We know that gap exists thanks to BPS...
Ah I just saw it being shared around. I’m trying to tackle the district nurse evidence and to be honest it’s just hard going. She did basically...
A log by David J Black aka Scottish Legal regarding Sean O’Neill’s reference to Sir S W, I’ve not read yet but think it’s along the lines of “who...
Sean O’Neill- Coroners decision on 9 Aug and a Further hearing 27 Sept to consider whether a Prevention of Future Deaths report is needed [ATTACH]
Th mail are STILL using that side panel “explainer” of Me saying the treatment is GET and CBT despite the charities writing to them <angry face>...
Telegraph (no paywall)https://archive.ph/folpH Times (no paywall) https://archive.is/5GWpz
with regards to any next steps - changes in NHS, Social care, research funding, even calls for a public inquiry, I’d hope the MEAssociation and...
7pm twitter and in real life, light a candle if you’d like to join in
Right after the decision is my view.
I think the hospital’s view is they did everything they were able to then she discharged herself against medical advice. We know exactly how this...
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