I thought the ME Community was her community for 14 years. She does realise the ME community isn’t a homogeneous blob?It’s just people with...
I am impressed, dismayed and fascinated! Amazing research skills. A tentacle running from insurance companies to an app to an ex-MEA fundraiser....
Thanks, I don’t Facebook like I don’t tweet!
I’m using visible plus - I wish they had a forum on their site for people to chat about how they’re getting on! I’ve been devastated at how much I...
Other MEA fundraising https://www.justgiving.com/fundraising/1millionstepsforme
I had googled as a result of the Co-signed letter by Fiona and Paul Garner, in response to George Monbiot’s excellent opinion column 12 March 24....
You can edit these days, thanks to Elon. You could always delete the tweet, which would leave the responses! They didn’t disappear with it.
The only way to “preserve” is to enter the link at the time into a web archive site, or to screenshot. Yes, twitter is full of people who amend...
I just thought she was interesting because when I googled, she had been heavily involved in the MEA until 5 years ago, so she’s done a massive u-turn.
These are certainly people with a lot of energy
I much prefer Instagram.Less arguing.
I honestly don’t know why people still use twitter, it’s just awful. People screaming into the void about what they do or don’t...
Wow I used to know Fiona Fox
Interesting…does she have her own thread? I wouldn’t say it’s patronising, there’s a real kind of “jolly hockey sticks” type of language on...
Just working out where he fits in, assume this is why he had to team up in his reply to Monbiot, as he didn’t have ME.
I will admit I’m prone to misremembering accurately. Edit -I meant inaccurately! At the same time it feels, to me at least, that there was some...
Post copied from the Paul Garner thread and a number of following posts have been moved from that thread Some posts refer to a letter sent in...
Post copied from the George Monbiot thread This post has also been copied to a thread 'Curable' mind-brain training app and ME/CFS, including the...
I see the letter was from both Fiona Symington, who developed ME after living with EDS and chronic pain and then was “cured” of ME and pain, and...
Well they can always try to sue the Guardian for defamation/s They don’t have the media power to fight George. They’d do well to keep their heads...
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