I don’t think she can see it as an isolated tragedy as it’s clear the NHS has no services anywhere for SVS ME, and medics, GPs haven’t been trained.
It seems that there was delay in starting end of life care for Maeve in August/September due to the safeguarding concerns. Dr Shenton wasn’t able...
This coroner, like the majority of them, is a barrister. She’s already mentioned something about the legal arguments for Negelct being a test in...
I’ve had a look at tweets but won’t be up to doing anything until this evening. Dr Shenton answers seem a mixed bag… The district nurse was...
It’s closed to new referrals from outside Leeds since 2022 click the link on that page “for referring clinicians” presumably it was closed earlier...
https://www.thetimes.com/article/9c78a59a-5469-4174-bb0a-2c0cad933f7b?shareToken=c0f3f33e973e5fc0db81e3ee4500844d The times (no paywall)
In these modern times, you shouldn’t have to consider sending a patient with VS ME over 200 miles to Leeds for a bed. You should be able to have a...
He seemed to think there was at Bristol, and Leeds where he sent the patient who later died. But the original question was about why didn’t he...
correct, there was reference elsewhere to her previously eating mashed up baked potato with added water, spoon fed from a cup by Sarah, then later...
I’d also say we’re not going to agree here on what ME is, there are various theories and it seems that there are differences in how medics...
I think Whitney Dafoe also tweeted that it seems if he’d been in the UK he’d certainly have died.
We don’t know how it happens, but we can focus on the fact that it does happen. And people need to stop using “fatigue” even Beth the dietician...
Report in the Belfast Telegraph (no paywall)...
Very few people, and very few medics, especially those who’ve never met a person with ME, will be comfortable taking their cues as to what’s “too...
I’m only repeating what tweeters have said, which means context gets lost, and specific wording is a bit unreliable, so don’t put too much stock...
Just to say, there isn’t a CFS ward. There used to be one a long time ago, which is what he was referring to. He was basically saying we need that...
Last part of Sarah’s evidence in no particular order, thanks to ME Advocates Ireland for the tweets and Paul R Keeble. Bold emphasis is mine....
Maeve - I’m not doing Graded Exercise, which is what testing sitting up is [ATTACH]
Not necessarily in good order. Bold is my emphasis. Sarah and the Coroner. coroner asked Sarah what her expectation of the March admission was....
I believe these are quotes from Sarah’s statement. Not necessarily in any order. Maeve “died at home… In the company of those she loved“ “Maeve...
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