I take 3, all on prescription - Lidocaine patches, Paracetamol and Nortriptyline. I would not be able to write or use my phone without it now...
Could you make it so we can choose more than one?
Yeah. Unfortunately starting from a few governments ago, when IAPT started rolling out, pretty much most mental health / talking support services...
Looked up Dr Husain and he has some connection to the PRINCE trial. (haven’t read his evidence yet)....
Another idea: That psychological therapies: CBT is not linked to in page 12 (Gecko has already mentioned this), but also moved out of “Managing...
Yes. I think this is a very good idea.
Actually CBT is, because symptom management on page 12 which you refer to, then links to many other things, one of which is a section which has...
Yes, could you copy this over to the 1.11 Management of ME thread, when you have time? I think it’s really important.
Yes there’s a section about psychological therapy / CBT 1.11.43 - 1.11.50. Therapists help develop the self management plan. We see physios/OTs...
Just had a quick look at the MS guidelines. From my skim read, the only mention of CBT is this (under fatigue): “Consider mindfulness-based...
I don’t know where to put this but: Why can’t we just not have CBT anymore? Why is CBT and psychological therapy still playing such a huge role...
Sorry, think my point should have been clearer. The reason why I said “normal environmental levels” is that even in situations when noise levels...
Yes, I’ve had a similar issue even when I was in a separate side room. It was awful. In my case though, no one else even seemed to think it was an...
I agree with what you’re saying. I have to admit I use noise and sound interchangeably - I always used to think of them as the same! When my mum...
I’m near tears with relief and happiness. I can’t read it all yet but just read this part of severe ME (sorry it’s coming up strange when I copy...
I initially wrote this in another thread but moving it here as I think it makes more sense here. (Joan Crawford wrote about Jo Daniels...
I sent the dialogues for neglected illness videos - the Severe ME page of the website - to the doctors I’ve been dealing with (who have so far...
Yes! I think that’s the one I must’ve been thinking of. Is this related to the same Oxford Brookes survey and report? So there were two reports...
I think that although with ME action, we can’t point to any specific big things like how ME association has Charles Shepherd sitting on the NICE...
Yes that’s the one! So ME action didn’t have any involvement in that then. I’m not sure why I’ve been thinking all this time that they did. That...
Separate names with a comma.
