Are you able to click on it and then turn your phone landscape mode? And zoom in as you read? It allows me to read. But I am struggling with it...
I didn’t say CCI in ME for decades. I said CCI. Infact I even wrote in my post “I’m not even talking about ME but about CCI in general.”. Dr...
Dr Gilete now saying that he is a pioneer in treating ME when they fulfil criteria for CCI https://drgilete.com/neurosurgeon-spine-surgeon/ “he...
This is what I was thinking. It’s fine for there to be a theory but why haven’t the surgeons published the evidence? No, seriously, why, when it’s...
This is so weird. I would agree with maybe keeping a food diary, maybe even sleep diary, anything even slightly different you’re doing throughout...
This is interesting - what do you mean?
Yes - and people with this type of CCI say that it’s the tipping the head back which is causing them problems. Jen B says her condition got worse...
Wait why is Esther Crawley interested in doing imaging of brains of PwME? That’s not what she usually does?
If people are happy to work with and edit and produce a document with someone who provides treatments includes injecting unproven things into...
Just feel despairing and hopeless at what’s happening around the world with coronavirus. China showed us what to do. Yes they did lots of things...
I’ve seen that document before but only just had a look at the names. I’m not sure I am completely happy to trust that document because of who it...
Not sure why media link not working but it says today is the start of DecodeME funding as it’s 1 September! [MEDIA]
You could ask your doctor about a different way of taking it - some GPs offer vit D injections. In my and my mums case , chronic vitamin D...
Can you point me towards the publication where all the measurements the surgeons who diagnose these conditions use (including CXA), have been...
I get pain that feels like it’s in my bones, was told it’s fibromyalgia. Legs are one of the worse places, the deep pain. Found no help for it so...
On Jeff’s website, I think this is new, about surgery outcomes: “We don't yet know exactly how many people with ME may have CCI or other...
You would think so. Personally I would like to see these surgeons given 500 MRIs of healthy people and 500 MRIs of those with CCI or even ME type...
I think the counter argument to this is, which I’ve seen pointed out on various social media when talking about CCI, is people who have severe...
I was going to say this. I score 0 on that score for bad days, 1 (feed myself) on good days. and yet I can get a lot worse than that and there’s...
Thanks. I found an analysis of the Raine Study, around 60% of the girls aged 14 scored positive on the Beighton Score with a cutoff of 4, and 36%...
Separate names with a comma.
