I don't see why they can't use both. I find that frustrating about meruk because Fukuda with optional PEM is CFS and they're funding quite aloe of...
So $5-6000 in 5 months of $30 000 target. Not great progress if they're still looking to do it. Are there reasons why, I saw in the linked to...
Watched 2/3. Excellent. Is he still crowdfunding for vagus nerve research? Can this forum get behind his effort?
Surely from this, setting up the ME APPG might be viable again , with fresh faces and a real purpose ?
I don't think unrest was supposed to educate so much via science, which is still sketchy and emerging, although she showed the 2 day testing...
It's good to be Using more forthright language given the terrible impact the neglect is having. This forthrightness and powerful advocacy has to...
I found it more a regurgitation of the paper than a condemnatory personal comment in the way the Jon stones and comments usually are.
Jon stones use of CBT in MS to justify it is silly, they have different response to activity and exertion, the MS society Facebook is full of...
Firstly very well done to the authors for the paper and for getting media attention. The articles might help to soften the strong hold of the...
They're doing pretty well because they control/influence all the media in a way we can only usually play catch up to. When you have a narrative...
http://forums.phoenixrising.me/index.php?threads/horrifying-article-in-sunday-times.23050/ There's a quote in this newspaper article copied in...
This is the MRC page where they highlight that understanding mechanisms not essential or high priority...
The MRC around 2004 had a meeting where they decided we didn't need to understand CFSME to be able to treat it, AFAICs there was utter faith in...
Thank you. I thought it looked wrong!
https://www.bbc.co.uk/programmes/p05y3tpw 2:11 in. Very good interview from knowledgeable, sympathetic interviewer and great interview by SC...
We all have the goal of getting much more high quality bio research. It just hasn't happened. Obviously in uk there's many obstacles which imo is...
However whilst old age is associated with a big slowing Down , becoming weak, frail, aches painy, it's still not really ME-like is it? My Nan...
Its astonishing as unrest airs around the world that the highly controversial, incarcerator of Karina was chosen to speak. One can only assume...
So all the time the MRC were setting up and funding a platform for dementia they didn't think to do something similar for us till now? I was...
The cost quoted by Alzheimer's uk was £26b p/a. That's 8 times more than us (although I think £3.3b low as MS quote £3-4b) for a population 4...
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