Thanks I'm still a bit confused because the CMRC initiative (supposedly bringing lots of people together ) plus ring fenced funding could have...
The cynic would say that why they were transferred.
David Cameron is now president of Alzheimer's uk. I didn't know that thats a catch. As PM he was very behind increased funding....
I'm confused about this dementia type platform idea. If MRC have resolutely refused to inject sums of money into CFS both in 2007 and as a...
I'm less outright skeptical now necessarily but resentful. I really don't see how 10 years on from the setting up of the ME expert group (CMRC...
This looks really good. I'm severely affected and as this research has been emerging my mystifying dysfunction (rather than fatigue) seem to make...
This should have been MEA main aim for decades. Sophie's story isn't new or unusual. She's not a single Case. The severe form of ME should be...
Following on valentjin Regarding the report thing, 1) could this mean that the report will be "waited on," before action from funding and policy...
Really the charities involved could do us all a favour and do a Q & A on the FND study and the researchers. We have concerns eg around their...
What they're studying and definitions are important and not really covered much. To date they've been doing CFS research essentially with Oxford...
It started 2012 didn't it or 2013. He's certainly had five years there too but was apparently unanimously voted back in. Before that he headed...
I'd been using a link on meruk website where I'd thought more than 0.5% went to them from amazon. It's worth doing as I regularly shop there...
There does seem a different feel to the minutes of February, more sense of energy, action and urgency. I wonder if unrest has made an impact, or...
What I find odd about CMRC are how few people part of it are actually doing biomedical research or otherwise involved in the field. So Holgate...
https://www.dementiasplatform.uk/about/governance £53m from MRC since 2014 Dementias Platform UK is a public-private partnership funded by the...
Hmm Well these people have AFAIC piddled about with groups and conferences since 2008 and not achieved much so don't expect applause for stepping...
Yes they offer services and sometimes fund help. I've only known of them in the context of severe ME , they helped a well known sufferer stay in...
I need 8-9 but often get around 7. I don't sleep in the day. Sleep is the first thing to go with PEM, I take meds so I get off to sleep but wake...
Not really the best person for the program then AFME, or is that why they put her forward, because she couldn't criticise
Well said. This is a discussion forum where people on this issue have tried to be both supportive but will be critical of elements if we see...
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