That's exactly why it was the last thing we needed repeating by "our side" on yet another national media opportunity and the last time I heard...
I will copy the last bit later then people can make up their minds. It's on,y a two minute section. Someone more able might do the rest. I'm not...
I'm not sure I agree with that I copied the beginning out too. She doesn't say I blame patients but all the sentences, there's more before and...
Additional transcript of the Julia newto q Q. What Is the road block here...... A. What it needs is researchers, clinicians and policy makers...
On relistening, Newton was so guarded and careful. She said a few positive things but re. She said that patients and clinicians and researchers...
fair point. The lack of joining dots us frustrating but uk journalism seems poor on this, there has to be a fundamental sympathy to even see a...
What will the public think I wonder?i got the impression patients need to calm down and stop scaring people off or seeming undeserving. I will...
My thoughts as I listened Gary is a good speaker. Being a journalist he might be quite a good advocate. I'm pleased he's recognising the...
Most of the biomedical research is Small scale stuff, sometimes the daily mail pick up on it with an "ME not in the mind after all" story. Whilst...
So what are thoughts? Initially brain imaging at Oxford with lactate as focus seemed good. Funding by Oxford university, again good. Latest high...
Well at least that's one way of getting some research on bedridden people which we can apply to the neglected community in me/Cfs. I've been...
I disagree. I think Nice criteria were an attempt too keep CFS vague once Oxford was being discredited. It's the criteria of choice for Crawley....
Someone just posted this on the ME association Facebook page which I've copied. (Thanks to long-term campaigner Anita Roddam for this find and...
True but they're also strong on the infrastructure, info and advocacy side too but often their posts on Facebook just get a handful of comments, &...
MERUK have had this sort of thing going in some form for some time I think.
Perhaps , and I include myself in this, we should get behind SMCI a bit more as a community too. I tend to focus on changing the negatives,...
A real shock and a real blow. No information given as to why or where he's going. Maybe the field was too frustrating but I thought he was making...
Great news, MEaction are a great global force for change. Maybe it will help the #millionsmissing hit harder
Mark Edwards is now quite a big player in the CMRC. I can't remember much about the study, discussed months ago, but I do know @Jonathon Edwards...
Well if CFS was just chronic fatigue.... I'm not going to say the study will find nothing useful or is bad but I'm not convinced the researchers...
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