This in a nutshell, to link to another thread debate, sums up how CFS has been treated , which is not that it has a serious biological basis. It’s...
I thought this same journalist had covered this story a while back. If the Lancet are just going to sit on their hands as long as they can and...
Generally it’s a very good article, helps to raise awareness. “● The effects of M.E. are devastating enough to leave 25% of patients housebound...
I guess trudie is informing the youngsters that they can recover in 6-12 months if they follow her treatment. Any “deviation “ from this is...
I was really moved to see Jamieson struggling to communicate and think he’s to be applauded for showing himself clearly weakened and impacted. The...
This is what irritates me on ME research, we shouldn’t be spending years discussing hypotheticals, we can either use the tools out there to assess...
I think the type of neuroinfllammation being thought to be there in depression,schizophrenia and ME brains shows up on PET scans. Doing PET scans...
I remember Prof Komaroff saying that there could be low grade or mild “ encephalitis” going on. Perhaps he comes from a specialism where this...
I think there was confusion this year when some groups , even here , published that there’d been a research publication by the Japanese 2018 which...
Lack of funding forces charity to cut services for young people with debilitating disease - Chronicle...
Sasha has replied succinctly, here’s my waffle ME wasn’t treated as biologically physical or biologically driven psychiatric in the way you...
The neurologist I saw said my brain might be affected but that didn’t make him classify it as neurological (he wanted psychiatrists to take it on...
I agree I get the same benefit from zopiclone ambien and benzos, though sadly I haven’t had the option to try clonazapam, GABA drugs, . Ativan...
We never get beyond just saying what’s wrong and should be there to how we can actually get there . Regarding no inpatient places, what can be...
It’s quite unusual for a local support group to have several, top medical advisors? Why are they required?
Hi Has anyone had homocysteine levels tested & subsequently treated and found any benefit? I was looking at this test for ease of use in the U.K....
I’ve just brought the cooling towels mentioned above, in bamboo as it’s eco friendlier. Does anyone have rave reviews for the expensive dyson...
I do have very severe ME and a surprising number of us do engage in some way, on Twitter, forums, blogs, even though we might do little else....
Military health, veterans too. He’s also currently doing a big mental health review for the government. I can’t think of any great achievement,...
I get shades of PEM, if you’re at I want to die levels I’d call it a crash. Milder PEM for me might be immune activation, insomnia, lasting a day...
Separate names with a comma.
