I actually don’t know if I agree. I think it’s BECAUSE we aren’t making proper progress on the issues, that patients become concerned with trying...
I think there’s a truth in that but regarding CFS terminology I think it’s actually preventing proper respect and recognition necessary to solve...
Totally agree Trish. Of course very useful for Crawley et al and really just a weakening to more like oxford criteria in uk to perpetuate the bps...
I know some people find the term PEM belittling to the severe distress most of us actually suffer with an exacerbation. But words are tricky. The...
A crash for me is a really bad flare of ME where I really go down hard as opposed to more mild PEM where I can feel worse, flukey, do less for a...
It hasn’t progressed as I would like. The DoH seems to think SHs strategic priorities are the way, that’s it. The strategic priorities have...
Of Forward ME members, MERUK left CMRC and the 25% I don’t think would join, so idk if CoM is representing all of them.
https://www.actionforme.org.uk/uploads/images/2018/07/DRAFT_Minutes_CMRC_10.7.18.pdf I’ve not seen these or this news anywhere before so posting...
I don’t see why a slightly more complex criteria is unacceptable, perhaps it’s part of the issue of expecting primary care to diagnose. MS & lupus...
He’s also an Alzheimer’s champion and prostate cancer “victim “so probably has enough health “causes”
Great interview by the family. They convey things well in a very moving way and it’s amazing they are still advocating post all what’s happened...
Wesley and Hawkins, wessely and jo brand, wessely and Stephen fry, wessely and prince harry, wessely Regis professor, working for government and...
AFAIC the jury is out onstimulants for concentration and memory, I've seen mixed remviews in the mild - still at school work - and certainly in...
I think Jason was very principled in his actions initially when everyone feared the IOM was going to be a massive stitch up. Some maintain it...
In this discussion of criteria perhaps we need to be mindful of the now dominant in the UK NICE criteria which requires as minimum just fatigue,...
My understanding of the Jason SEID study was he was using a very weak definition of PEM as you quote, whereas SEID criteria IOM I think go beyond...
In a cash strapped era CFS services are seen as an area they can get away with skimping on. It's been like this always. Even dr bansals service,...
Isn't a part of the problem that we have few Drs/researchers involved in our field for news to travel and networking to occur and all those who...
Wow, that was a short reply. I agree with Sasha, the answer to you need to put in a lot more money isn't "we put in a little money previously"....
I was reading about dementia research, which is really taking off for various reasons. I saw that there's been a target set for some form of...
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