[MEDIA] Action for ME have a survey on the NICE draft which they say will inform their feedback. 120 people have done it
thanks everyone. It seems I was especially weak. Perhaps that's why I succumbed as a teen , most people commenting got sick well into adult life....
In my view this is gross over simplification and likely wrong too. I'm surprised at this from a dr with experience of severe ME, Jessica Taylor...
I agree. I was pro SEID and hounded off a group for "betraying PwME", despite being bedridden with classic ME and just wanting to shift away from...
Wow that's impressive. You were sick in later life? I'm not sure if I had ADHD/anxiety so maybe for me the idea of focussing all that time seems...
I was pretty active too and would have classed myself as fit , active and healthy. Except as discussed on here, endurance sport - swimming &...
I was wondering if people can think back to their pre illness levels of energy. Do you think you could have regularly worked 12 hour shifts? I...
Good point and the toxic message around CFS in the uk (I don't think you have this image problem In the states, obviously the SMC part engineered...
Regarding characterised by fatigue, this is how AFME are describing it and they also wrote the parliamentary briefing bit that also copied their...
Re PEM in the severe , i am very severe and yes I am in often constant PEM because any life /stimulation is an exertion , however I can also, like...
For me the IBS segment is unhelpful. It's always riled me right from the days Wessely decided IBS & CFS could be dumped as facets of the same...
Looks like miss Rachel french has expertise in Gastroenterology, probably a surgeon, I am surprised she has expertise in FM & ME Professor...
Hmmm. Compared to my response to the iime one, still looks like lots of spaces filled with stuff outside ME & CFS biomedical research. And...
It is simply awesome news, it looks like a study that seeks to answer a lot of big questions and the money is coming from the NIH immediately ,...
Great news for IOM and us More here https://www.healthrising.org/blog/2018/06/25/davis-nih-grant-chronic-fatigue-syndrome/ Not sure if Corts...
It is a shame that the well articulated pace criticisms weren't printed, but I'm not sure if thats more BBC unwilling to Print something...
Reasonable NHS diminishes the illness in Its description The reason why PACE is criticised by Carol was sadly missed out , it goes beyond just...
I think it depends what's found eg Newton is already in a minor way, trialing a diabetes drug that seems to help with some of the energy in the...
I Apologise for sounding totally negative in my responses it's just this positive , vague spin, perhaps it's genuine for newbie prof Chris who has...
The question implies patients dissatisfaction comes from patients misunderstanding, I don't think that at all. However the CMRC define themselves,...
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