I also don't agree, as I've said, with the nows the time - it was before - or the window will shut talk. I don't think #MEAction have any...
NICE doesn't require PEM , it requires PEM or PEF, PEF could be a deconditioning response and doesn't correlate with the global exacerbation of...
I actually think it's a cheek to even raise the Ricky gervsais thing and say he should give us an apology, it's irrelevant. It's not HIM I want an...
Yes Stephen pound was so caring and persuasive but had the name wrong and then throwed in it could be psychosomatic WTF, not Helpful. And yes...
Today should really have been about action.
Some of the speakers including Carol & Ed davey were absolutely great , especially in following iimes £20m call for research but the minister has...
The doctor probably reflected typical NHS gp, i.e. Only superficial understanding. Doesn't seem to have checked out for example the bmj info which...
I think it's generally pretty good. The psychological was only raised as the basis for pace, which it kind of was, although Jonathan's right it's...
Yes as I wrote it I had the sense of "been here before". I didn't search up the PR thread , I searched Carol head and then saw the thread and...
The question on why the millions affected haven't to date in any way been mobilised is an interesting one. Why money isn't coming in from the...
But th But they haven't over thirty years been successful so what are they then doing wrong? Are they not employing the right staff? We can't...
Unfit in middle age: Are you doomed? http://www.bbc.co.uk/news/health-44468755 Mentions "frailty" in middle age as higher risk of early death &...
Anyone think the whole SMC involvement was wierd in the first place, if they're being let go now because of altered definition & independence,...
The original PAG did publish the list of names of those who agreed to be known. To be a member you had to be broadly supportive of the MEGA...
IF CMRC really wants to claim patient engagement they should cosider holding phone ins like the nih where un selected patients can ask questions...
It is unforgivable to me that funds weren't pitched for after the Gibson report, or after the 2012 one off ring-fenced allocation. We didn't have...
As collaboration is the buzz word, I can see why being able to quote another major body as part of your movement is useful. Of the U.K. Research...
Me too. They can't just act as if the past twenty years haven't bern totally wasted and expect the patients who've lived and suffered through that...
[ATTACH] [ATTACH] https://www.actionforme.org.uk/uploads/images/2018/05/Draft_Chair_approved_mins_24.4.18.pdf I don't know if this has already...
I haven't seen this but think one of the posts is alluding to the stuff probably going on behind the scenes at the moment with MRC on funding and...
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