I agree with sunshind3. The parameters of the ME spectrum are the minority who almost recover to the extent they can live symptom free to the...
The ME association had a page for people who wanted to do unrest screenings with tips and advice etc. One part was suggesting people contact the...
The problem with this for patients is that to us this isn't a matter to be debated, researched and only then proven, once the evidence supports...
I'm unsure about that statement, people like Nigel Speight have used that terminology primarily biological or physical , probably in context of...
I think AFME were just given the peter white pain study, if that's what is being referred to, to continue once the group "CFS something or other"...
I think iimes tone is sometimes unhelpful and they have chosen often (many would say rightly) to stand aside so therefore expecting inclusion is...
Lots to look good about the 2 PhD projects AFME are part funding. Regarding FND my concern is regarding the mark Edwards research ad the idea is...
IBS fatigue vs ME , not comparable in my view. Trivialises to say we share some of theirs, they some of ours
If the feature is already recognised in cancer and MS has it lead to any treatments especially in MS?
Dr Nina muirhead can be seen on a video on AFMEs page where she attended their Geneva thing and gave a talk. [MEDIA] I'm all for medics getting...
The colloquium looks really good. And a strong mix of both uk and international, mainly USA & Norway, researchers.
I think it's because there is actually quite a close relationship with the CMRC and the MRC NIHR, their representatives attend at least some...
Research funding is my biggest bug bear. I'm glad it's got some attention I'm going to comment separately on figures but just have something to...
It is a good article. I'm not sure about GET CBT being regarded as psychological therapy rather than rehabilitative therapy. The clever quote...
I hope VanElzakker is involved I think it suggests OMF really want to get things moving, I'd wondered if theyd eek out the pineapple funds over...
Great, i don't know if this is funding a centre that didn't get nih funds or something new but it's great that Harvard as a prestigious centre is...
It's funny I never think of a cure, I'd be insanely grateful for just 10% lessening of severity
I don't give a flying fig what usual practice is. I've come to see that even that language is slippery because they do ofcourse ring fence , or...
To be honest, as a bitter old cynic I'd rather uk me action worked more independently as the other charities imo can have a dampening effect and...
They can stick ideas of wait and see Thanks to these advocates, we simply can't accept this. This is not the way to make up for decades of...
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