I've read that doctors have been taught detachment cognition because investing in pts emotions will interfere with their clinical assessment and...
Financial Assistance Program for Lumina Program Expected Timeline Funding of the Lumia™ Financial Assistance program has already begun, and...
Dr Louise Newson, Professor Deepak Ravindran, Dr Sarah Glynne, and Dr Ellen Fallows Offer 10 Top Tips for Primary Care Practitioners on Improving...
Dr. William Dugal experienced total paralysis after developing Guillain-Barre syndrome. After a year of rehabilitation, he's back to working as...
Full Title: Noradrenaline-induced change in cerebral blood flow in health, traumatic brain injury and critical illness: a systematic review with...
Good gracious. Céline Dion has given interviews lately concerning her diagnosis of Stiff Person Syndrome. The years of not having a...
Yup, like when I tried educating my M.E doctor and Virologist about the hypercoagulation theory for M.E and was warned not to become their guinea...
Why Lumia™? Our solar-powered wearable device uses the power of light to track changes in the blood flow to your head. Together, we can illuminate...
News Release | June 11, 2024 WASHINGTON — A new National Academies of Sciences, Engineering, and Medicine report says the federal government,...
Admitting they don't understand M.E or that they haven't figured it out yet is not the same as dismissing the patient. I can respect that.
A couple of days ago on X there was a patient dx with M.E who posted information about CCI/AAI, MCAS, EDS that received many replies from pts and...
I was able to run during the earlier years of M.E and continued to do so even when I experienced severe PEM and recovered after 3-4 days....
Optimizing sleep quality and pain syndromes was the only treatment my M.E doctor offered over 30yrs ago. He prescribed whatever it took to...
Link posted by a Professor of Psychiatry & Pharmacology on X from Canada.
Abstract Objective Post-COVID-19 Condition (PCC) is a prevalent, persistent and debilitating phenomenon occurring three or more months after...
I'm not sure where to post this for pwME in the U.K Some might not be aware of this code for housebound patients? Code 13CA [MEDIA]
Scientific Rationale for the Investigation of Bucillamine to Treat Infectious Diseases, including COVID-19 Rivive Therapeutics
“We agree with the FDA feedback and with their recommendations that provides a pathway for the development of the Revive LC POC Lateral Flow Test...
I had all the PCR/DNA lymphocyte tests for viruses 11 years into the illness when I felt 'viral' and nothing showed up.
I think I had PVFS for at least 5-6yrs before I developed delayed PEM as I experience it now. In the second year I had a PEMish experience...
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