For me gut symptoms are a downstream symptom as well. The worse the ME, the severer the PEM. I had a lot of awful stomach nausea in my...
I feel it around the back of the kidneys as well, a very sore uncomfortable feeling like you don't have much strength there to hold yourself up...
Yes, a very significant change occurred for me also. I cannot tone up the way I used to since ME. I get PEM severe and get very sick from trying...
I went through the experience of anorexia but didn't get to the severe skin and bone situation but I did get very thin. I was 15 years old. From...
I voted that I haven't experienced tinnitus that I can recall. I've only experienced a sound that is like the tone of a telephone before you ring...
The subject of donating blood came up on a neighbourly site I joined for my area a few weeks ago and there were a lot of Kiwis who posted that...
I keep reading GWAS as Gulf War.. so it has been confusing for me. I would love to be able to participate in this study. I am in New Zealand...
@Marky I don't think your going to be able to continue with this. I've tried many times with strength training at home. There is something in our...
Sounds like you are overdoing @Marky and getting accumulation PEM but always important to get your heart checked by a doctor as you have done,...
Patients who are at severe levels of ME (especially) don't want to hear discussion of deconditioning, it's an insult and very distressing to the...
Are the profoundly severe unable to walk to the bathroom? There was a stage during my illness where I could only just walk to the bathroom and...
I don't like using the word 'mild' either. My cognitive symptoms were severe and I was experiencing PEM but I was still able to work in those...
Yes, I was the same. I couldn't bear to be touched. I thought I was going to die many times and I didn't call an ambulance because I was too ill...
Regarding sleep, I had severe insomnia getting only 4 hours sleep and a lot of nights no sleep at all. I was also not able to tolerable medication...
Being allowed to rest. There is not enough rest for the severe types of ME and that is why it takes years to get to moderate. It's a long slow...
Up to page 5 already and I have only read the first post in this thread a few hours ago. I want to post but will have to read everyone's post...
@arewenearlythereyet My brain symptoms in ME are an inability to learn and retain information. I can no longer take in a lot of information,...
@Perrier Thanks for being a wonderful Mum. I have my wonderful Mum with me too. I didn't think I would ever come out of those severe years because...
I wonder if your blood pressure is dropping too low @alex3619 you probably have checked for this though? I'm thinking of you.
This might be too long for some to read. Sorry for this. Yes, there are similarities to having a flu and overdoing and the flu worsens severely....
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