I can't take the risk with the flu shot. Never had one. It was a flu-like cold that caused my mild ME onset and a very nasty flu which sent me...
@Forbin Very much what I experience. My gait gets much worse and I have to concentrate on walking. It's hard work and with the feeling like you...
I can't recall ever having an ear infection. I do get a thick feeling in my ears from time to time but that could be due to chronic sinusitis. I...
I think brain fog is possibly apt for some members because their cognitive symptoms are not as severe as others. @Trish Thank goodness we have...
I lost a lot weight at my severe onset also. I also couldn't make up that weight that I lost until I got to menopause. (14 years from severe ME...
Not sure about fasting. When I am at my sickest I get very weak with nausea and cannot eat. I start to improve a few days later with the help of a...
Same here. I used to be able to tone up to a level that I like in 3 weeks before ME. Since ME I can't tone up properly. When I do try I get severe...
Last summer I found wetting a soft thick tea towel and laying it over my chest in bed helped to get me off to sleep.
I prefer to keep malaise. Malaise envisions to me someone languishing in bed really sick with something. I was wondering last night if another...
I get it immediately too. In my severe years I got a headache immediately along with the difficulty to think. Couldn't bear anyone to talk to me,...
Same here through my mild years. It wasn't until severe ME onset and PEM so severe that I finally was able to work out that it was ME and that...
I didn't think the area for the throat swab was a good one but what do I know. ;) When I was taking the swab it felt like I wasn't getting much of...
Same here. Everything changed for me when I got an infection that changed my microbiome. I think this is where it all started for me as well. My...
@EzzieD I missed reading an email from Ubiome and got the same message you did for my throat swab. They are testing it again, so could be a long...
@TigerLilea I think for some of us we have microbiome changes that possibly lead us on to ME. (?) I think I have other areas of microbiome that...
Thanks @Inara I saw Streptococcus but not Staphylococcus in the my nose sample. The Streptococcus wasn't high though. My sinuses were bad at the...
I received the nose swab result only today. Throat swab is still being processed. I couldn't see the breakdown of bacteria, so will have to go...
I should add that I was so sick it felt like I not only had cancer but meningitis, nasty flu on top and more.
My severe onset ME and the months following felt like the last month of cancer. I felt terminally ill. I often felt my body was putting me through...
@Cinders66 I did have two jobs (full-time + part-time) off and on over the years before ME hit. I found I could only do it for awhile. I would get...
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