A paywalled reply by Adam Svanell, editor at Svenska Dagbladet (Sweden's third largest morning paper). Unfortunately I don't have access, but it...
Maybe I have misunderstood the meaning of "malingering", but isn't it by definition an act, something you intentionally choose to do? I don't...
False hope is the absolute worst... :( I don't think it's fair to say that severely ill people hang on to every word of hope, though. I believe...
Jonas said something at the end about talking about chronic illnesses, maybe Kalliope can comment on that? I'm not able to rewatch, can't remember...
I understand. They didn't explain why they chose to focus on "hope" in the title. Personally, I feel like the focus on "hope" is often really...
Ok. It takes me to a playlist on their YouTube channel. If I scroll down, Jonas's video is at the very bottom.
Did you click the link to their YouTube playlist in their comment in the discussion section of the Facebook event page? It's the last video on...
Does this one work better? https://facebook.com/events/s/upptalk-weekly-hopp-for-patien/796327860969927/
I checked the event's Facebook page, the Youtube video is linked from there. Definitely ok to share widely :)
A friend sent the link to me. I don't know how or where she found it. I can ask her.
[MEDIA]
A brief overview of what ME is, symptoms, mentioned how ill severely ill people can be, what bodily systems seem to be involved. Mentioned a few...
They recorded the talk, but didn't say if they will make the recording available online. I made an audio recording, I'd be happy to send you a...
It was a great talk :) No new info, though.
For those of you wanting to have a closer look at the evidence for the diagnosis and treatments of resignation syndrome ('sleeping beauty'...
Reply by Kjell Rautio, investigator of welfare, health insurance and social politics. Rautio then gives several examples of when Kjöller has...
There's a paywalled editorial by the infamous Hanne Kjöller in Sweden's largest morning paper today. I don't have access, but I suspect the...
Maybe it's just me, but I find the title of this thread confusing. If this thread is meant to be about pwME's personal experiences of getting a...
Fallstudie belyser pots vid långtidscovid https://www.lu.se/artikel/fallstudie-belyser-pots-vid-langtidscovid Google Translate, English
Copied from this thread Prof Jonas Bergquist will be giving a zoom talk on Tuesday, 6 April. The talk will be approx 30 minutes long, in Swedish,...
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